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Youth Stories

Real Experiences. Real Resilience.
Real Growth.

Helping others along the way.

Every young person’s journey with rheumatic disease is different. These stories share the lived experiences of youth who are navigating challenges, building confidence, and finding their voice.

Through connection, support, and community, these young people are showing what’s possible — and helping others feel less alone along the way.

Featured Story

Sidney’s Story

Discovering confidence through connection.

“When I first diagnosed, it felt like no one around understood what I was going through. Managing school, friendships, and treatment all at once was overwhelming.” — Sidney

Meet Sidney.

When Sidney was first diagnosed, it felt like no one around her understood what she was going through. Managing school, friendships, and treatment all at once was overwhelming.

Everything changed when she connected with other youth through Cassie + Friends. Through shared experience, she began to build confidence, speak openly about her journey, and take on leadership opportunities within the community. Today, Sidney is helping other youth feel seen, supported, and empowered.

At first, it was difficult to explain what she was experiencing. Some days were harder than others, and the unpredictability of symptoms made it challenging to keep up with school and social life. Like many teens, she didn’t want to feel different — but at times, it was hard not to.
Through Cassie + Friends, Sidney began connecting with other youth who understood those exact challenges. Hearing others talk openly about injections, fatigue, and navigating friendships helped normalize what she was going through. It gave her a sense of relief — and a reminder that she wasn’t alone.

Over time, those connections turned into confidence. Sidney became more comfortable speaking about her experience, asking for support when she needed it, and finding ways to stay engaged in the things that mattered to her. What once felt overwhelming began to feel more manageable.

Getting involved in youth programs opened new opportunities. She started participating in conversations, sharing her perspective, and eventually stepping into leadership roles. Being part of a community that valued her voice helped her see her experience not as a limitation, but as something that could help others.

Today, Sidney continues to stay connected, support other youth, and advocate for greater awareness. Her journey reflects what’s possible when young people are given the space, support, and community to grow — at their own pace and on their own terms.

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More Youth Stories

The Long Road to a Name: Daniela’s Lupus Story

Daniela is an 18-year-old youth living with Systemic Lupus Erythematosus. In this piece, she shares her journey to diagnosis, the realities of growing up with a chronic illness, and how her experiences have shaped her passion for advocacy and helping others navigating childhood-onset rheumatic disease.

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My Life with PFAPA: Kai’s Story

We’re honoured to share a guest blog from one of our incredible youth in the community, Kai. Diagnosed with PFAPA at just seven years old, Kai faced more than most kids his age.

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#WhyIRun: Emma’s Hope

I run with C+F with hopes of expanding their reach and bringing support to even more young people like me. The impact of their work cannot be overstated – it’s a lifeline for families navigating the endless challenges and decisions of pediatric rheumatic diseases.

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Navigating Morphea – Michelle’s Story

Morphea, also known as localized Scleroderma, is an auto immune disease that causes hardened and darkened patches of skin on the face, hands, feet, or anywhere else on the body.

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Living with JIA – Lisa’s Journey

For those who are currently facing a new diagnosis, I encourage you to reach out and maximize your use of available resources

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#WhyIRun: Chase’s Story

We are so fortunate to have a large support system from our families and friends as we navigate this chapter of our lives.

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Share your story

Every experience matters. By sharing your story, you can help others feel supported, understood, and inspired.

Share your story