Data + Impact
Measuring progress. Improving outcomes. Driving change.
Cassie + Friends is committed to understanding and demonstrating the impact of its work. By collecting and applying data, we can measure progress, identify gaps, and continuously improve programs, resources, and research initiatives.
Our focus is on outcomes that make a meaningful difference in the lives of children, youth, and families living with rheumatic disease.
Why Data Matters
Data helps ensure that programs, resources, and research efforts are not only well-intentioned, but effective. It supports better decision-making, strengthens programs, and helps direct resources where they are needed most.
Through data, Cassie + Friends can better understand community needs, measure program effectiveness, support research and clinical advancement, and demonstrate impact to families, partners, donors, and stakeholders.
“Data allows us to move beyond assumptions and understand what is truly making a difference in patient care and outcomes.”
— Research Partner
Where We Measure Impact
Program
Reach
Education +
Resources
Research
Contributions
Community Engagement
By the Numbers
Transparency
We are committed to transparency and accountability in how we measure and share our impact. By clearly communicating results, progress, and learnings, we help build trust with the families, partners, and communities we serve.
Our approach to data is open and responsible—ensuring that insights are used thoughtfully to improve programs, guide research, and support better outcomes. We regularly evaluate our work to understand what is effective, where improvements are needed, and how we can continue to make a meaningful difference.
Human Impact
While data provides valuable insight, impact is also reflected in the lived experiences of families and youth. Their stories, feedback, and participation help us understand the real-world difference our work is making.
By combining numbers with lived experience, Cassie + Friends can better understand what matters most and where support can make the greatest difference.
“The support we received changed how we manage everyday life. It gave us tools, confidence, and a sense that we weren’t alone.”
— Parent, Cassie + Friends Community
Data to Improve
Data is used not only to measure outcomes, but to guide future direction. Insights from programs, research, and community feedback inform ongoing improvements and help shape new initiatives.
This ensures that our work continues to evolve alongside the needs of the community.
JIA PaCER
IA-PaCER was a 12-month, part-time, fully funded virtual training program created through a partnership between UCAN CAN-DU, Cassie + Friends Society and the University of Calgary Continuing Education.
Youth with lived experience of juvenile idiopathic arthritis learned how to conduct research with, by and for patients. At the end of the program, participants used their patient experience to help inform and conduct research focused on the transition from pediatric to adult JIA care, while earning a University of Calgary continuing education certificate.
The program also connected participants with a broader network of professionals involved in JIA and patient-engaged research. Through this training, patient researchers could go on to join research teams, consult with healthcare and funding bodies, and share research findings through presentations and publications.
Be Part of the Impact
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