Stories
Every young person’s journey with rheumatic disease is different. These stories share the lived experiences of youth who are navigating challenges, building confidence, and finding their voice.
Through connection, support, and community, these young people are showing what’s possible — and helping others feel less alone along the way.
The Long Road to a Name: Daniela’s Lupus Story
Daniela is an 18-year-old youth living with Systemic Lupus Erythematosus. In this piece, she shares her journey to diagnosis, the realities of growing up with a chronic illness, and how her experiences have shaped her passion for advocacy and helping others navigating childhood-onset rheumatic disease.
My Life with PFAPA: Kai’s Story
We’re honoured to share a guest blog from one of our incredible youth in the community, Kai. Diagnosed with PFAPA at just seven years old, Kai faced more than most kids his age.
#WhyIRun: Emma’s Hope
I run with C+F with hopes of expanding their reach and bringing support to even more young people like me. The impact of their work cannot be overstated – it’s a lifeline for families navigating the endless challenges and decisions of pediatric rheumatic diseases.
Navigating Morphea – Michelle’s Story
Morphea, also known as localized Scleroderma, is an auto immune disease that causes hardened and darkened patches of skin on the face, hands, feet, or anywhere else on the body.
Living with JIA – Lisa’s Journey
For those who are currently facing a new diagnosis, I encourage you to reach out and maximize your use of available resources
#WhyIRun: Chase’s Story
We are so fortunate to have a large support system from our families and friends as we navigate this chapter of our lives.
Growing up with JDM – Layla’s experience
Living with JDM has made me obsessed with self-care and vigilant about what I put into my body. I’m passionate about maintaining an active lifestyle; I work out regularly, I am a figure skater and I stay engaged in activities that keep me fit.
Still Shining: Ava’s Journey with Juvenile Ankylosing Spondylitis
May is Ankylosing Spondylitis (AS) Awareness Month. Many people think of AS as a condition that affects adults, but it can begin in childhood, too. Ava’s story is a powerful reminder of the resilience of kids living with Juvenile Ankylosing Spondylitis and the importance of early diagnosis, support, and community.…
#WhyIRun: Stephanie + Tommy’s Story
Meet Stephanie, who is running with Team Cassie + Friends to raise awareness for Juvenile Arthritis for her son, Tommy! Diagnosed with oligoarticular Juvenile Idiopathic Arthritis (JIA) just after his second birthday, Tommy’s journey has been full of ups and downs.
World Lupus Day: Hunter’s Journey from Diagnosis to Mentorship and Research
This World Lupus Day, we’re honoured to share a guest blog from one of our incredible youth mentors, Hunter. Diagnosed with lupus at just nine years old, Hunter faced more than most kids his age. Now at 24, Hunter works as a research assistant at SickKids Hospital in Toronto, helping…
#WhyIRun: Meet Team Cassie + Friends Montreal!
La version française suit la version anglaise. We’re so excited that on May 25, 2025, Montréal will host its FIRST EVER Team Cassie + Friends walk/run! Read more about the amazing families that will be joining us below—and then join kids like Valerina, Beatrice, and Brooklyn by running or walking with…
#WhyIRun: Marley’s Story
We’ve had many highs and lows since her diagnosis, but we are so thankful for the Cassie + Friends community. It’s made us feel less alone.