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Youth Leadership Network

A national community of youth leaders

The Youth Leadership Network brings together young people from across Canada who are living with rheumatic disease and want to make a difference. Through connection, collaboration, and advocacy, youth in this network help raise awareness, shape programs, and share their lived experiences to improve care and understanding.

It’s an opportunity to build leadership skills, connect with peers who understand your journey, and contribute to a growing national community.

What the Youth Leadership Network Offers

Opportunities to grow and lead

Members of the Youth Leadership Network participate in activities that build confidence, leadership, and communication skills while contributing to meaningful change.

Examples include:

  • Participating in youth advisory discussions
  • Speaking at events or webinars
  • Sharing lived experience to support research and awareness
  • Connecting with other youth leaders across Canada
  • Contributing ideas that shape Cassie + Friends programs

Each opportunity is designed to help young people develop their voice and leadership in a supportive environment.

Ways Youth Can Get Involved

Leadership can start in many different ways.

The Youth Leadership Network gives young people opportunities to build confidence, share their experiences, and contribute to meaningful change. Whether someone wants to speak up, support others, raise awareness, or take part in research, there are flexible ways to get involved.

Become a Future Leader

Build leadership skills, contribute ideas, and help shape youth programs.

Explore the Network

Share Your Story

Learn about JIA, Uveitis, related conditions, and how they affect the body.

Share Your Story

Join an Event or Run/Walk

Take part in community events that raise awareness and support families.

See Events

Participate in Research

Add your voice to research that helps improve care and outcomes.

Explore Research

Youth Awards + Recognition

Celebrate youth making an impact through advocacy, awareness, and community involvement.

View Awards

Who This Program is For

Open for young people who want to engage and help others.

Youth Leaders

The Youth Leadership Network is open to young people who:

  • Are teens living with juvenile arthritis or another rheumatic disease
  • Typically aged 14–21
  • Want to connect with peers and build leadership experience
  • Are interested in sharing their perspective and helping others

Participants can engage in ways that fit their comfort level and availability.

Why Youth Leadership Matters

Because lived experience drives change

Young people bring a powerful and important perspective to conversations about health, research, and community support. When youth share their experiences, they help shape programs, improve understanding, and inspire others facing similar challenges.

The Youth Leadership Network exists to make sure youth voices are heard — and valued.

“Talking with my mentor helped me realize I wasn’t the only one going through this.” — Youth participant

Read Youth Stories

How to Get Involved

Getting started is easy

  1. Submit a mentor request form
  2. Our team reviews your request and identifies a strong match
  3. We introduce mentor and mentee and help set up the first conversation
Apply to Join

Support Us

Support families and youth across Canada
Your donation helps make Cassie + Friends possible and funds programs and research.

Building Confidence for the Future

Leadership doesn’t always mean standing on a stage. Sometimes it begins with simply sharing your story, supporting another young person, or contributing your ideas.

Through the Youth Leadership Network, young people develop confidence, connection, and leadership that can carry forward into school, careers, and community life.

View the network