NEWS

Information for families reviewed with pediatric rheumatologist across Canada. If your child takes tocilizumab (Actemra) or a version of it, like Tyenne or Avtozma, you may be hearing about changes. Here’s what we know as of October 15, 2026. What’s happeningTyenne is in short supply, and how much that affects…

Daniela is an 18-year-old youth living with Systemic Lupus Erythematosus. In this piece, she shares her journey to diagnosis, the realities of growing up with a chronic illness, and how her experiences have shaped her passion for advocacy and helping others navigating childhood-onset rheumatic disease.

Marissa is the Family Engagement Coordinator at Cassie + Friends Society and a parent to a child living with juvenile arthritis. This letter reflects her personal experience and the journey that led her to support other families navigating childhood-onset rheumatic disease.

When families feel informed, supported, and connected, everything becomes more manageable. That steadiness — what many describe as “finding our confidence again” — is often the beginning of real progress.

We’re honoured to share a guest blog from one of our incredible youth in the community, Kai. Diagnosed with PFAPA at just seven years old, Kai faced more than most kids his age.

I run with C+F with hopes of expanding their reach and bringing support to even more young people like me. The impact of their work cannot be overstated – it’s a lifeline for families navigating the endless challenges and decisions of pediatric rheumatic diseases.

Back-to-school can be exciting—but for families and youth living with juvenile arthritis (JA) and other rheumatic diseases, it can also feel overwhelming. Between medical care, school prep, and new routines, there’s a lot to juggle.

Morphea, also known as localized Scleroderma, is an auto immune disease that causes hardened and darkened patches of skin on the face, hands, feet, or anywhere else on the body.

For those who are currently facing a new diagnosis, I encourage you to reach out and maximize your use of available resources

We are so fortunate to have a large support system from our families and friends as we navigate this chapter of our lives.

Living with JDM has made me obsessed with self-care and vigilant about what I put into my body. I’m passionate about maintaining an active lifestyle; I work out regularly, I am a figure skater and I stay engaged in activities that keep me fit.

May is Ankylosing Spondylitis (AS) Awareness Month. Many people think of AS as a condition that affects adults, but it can begin in childhood, too. Ava’s story is a powerful reminder of the resilience of kids living with Juvenile Ankylosing Spondylitis and the importance of early diagnosis, support, and community.…