Chronic pain

Daniela is an 18-year-old youth living with Systemic Lupus Erythematosus. In this piece, she shares her journey to diagnosis, the realities of growing up with a chronic illness, and how her experiences have shaped her passion for advocacy and helping others navigating childhood-onset rheumatic disease.

In my 7 years of living with Ankylosing Spondylitis since the age of 21, I’ve had to teach a lot of people quite a few things about my illness. It’s a relatively unheard-of form of arthritis in day-to-day life. Most people have heard of Rheumatoid Arthritis, but not usually Ankylosing…

At Family Day 2016, Cassie and Friends volunteer Alison Legge gave a powerful speech about Juvenile Arthritis and the effect it has on mental health. This February, Alison underwent bilateral TMJ replacement surgery to ease the pain in her jaw, and is currently having a speedy recovery. She is now the…