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Advocacy

Raising Awareness, Sharing Hope: One Family’s Journey with SJIA

We’re so excited to introduce Tamara Schnarr, one of our new parent ambassadors for the Kitchener-Waterloo region! Tamara, a Realtor with a background in marketing, graphic design, and event management, is passionate about giving back to her community and is looking forward to supporting Cassie + Friends’ mission – a…

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A Year of Advocacy and Impact: Our 2024 Highlights

To have a chronic illness is to be fighting every day for the next. My name is Paige Simpson. I am 17 years old, I was diagnosed with Juvenile Idiopathic Arthritis, otherwise known as JIA. I have been treated for JIA for 15 years but have been battling this condition…

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Attacking Barriers: Fencing with JIA

For a lot of kids, being diagnosed with a rheumatic disease, like Juvenile Arthritis (JIA), means adapting to a whole new way of life. Today, we’re honoured to share the story of Paula and her son Simon, who was diagnosed with Enthesitis-Related Arthritis (ERA) two months ago. While navigating this…

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Seeing Possibilities after Diagnosis: a Uveitis Story

Throughout my life I have been granted many titles; mom, wife, daughter, registered nurse, and writer are just a few. These are the titles that are associated with my name. I could be described as outgoing, humorous, modest, and perhaps kind too. These would be some characteristics that people from…

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Brick by Brick: Youth leaders build the patient experience they never had in hopes of helping others

Author: Zoya Jiwa, YLC Program Designer and founder of As We Are Style – a blog about facing health challenges with courage and style. Last weekend, Cassie + Friends’ Youth Leadership Committee got together for our first team retreat on a surprisingly sunny afternoon (thank you, Vancouver!) with a lot of excitement…

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Puppet show helps BC Interior parents fight loss of children’s arthritis care

Last month, Cassie and Friends’ Juvenile Arthritis at School Puppet Show hit the road to bring juvenile arthritis education to the Okanagan! The special puppet show, which was offered free-of-charge to schools by Cassie and Friends with support from a $10,000 grant from the Telus Friendly Futures Foundation, tells the story of Cassie…

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You Matter to Kids – Annual General Meeting, April 2018

On Thursday, April 19th, the members of the Cassie and Friends Society Board, youth leaders and parent volunteers came together for our Annual General Meeting. We are excited to share the report provided by Cassie and Friends’ Co-Founder and Board Chair, David Porte, outlining the amazing things we’ve been able…

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Please Help: Our Canakinumab campaign has reached the Ministry of Health

Cassie and Friends Society, in partnership with Arthritis Consumer Experts, is leading a call for the BC Government to drastically improve the outlook of children with SJIA by allowing reimbursement coverage for canakinumab for the small number of children who need it. Our campaign for equitable access has now reached the media,…

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