advocacy stories

At Cassie + Friends, we believe that every child and family should have access to timely and optimal rheumatic disease care. That’s why we launched the C+F Northern BC Project, to better understand the barriers to diagnosis, care, and patient support for families living in remote/rural communities and explore how we…

Hello, my name is Queena, and I was diagnosed with Lupus and Juvenile Arthritis in 2021. During this time, it was hard to ask for help. For the most part my “illness” – or whatever was causing my swollen joints and excruciating pain – was invisible. It wasn’t until later…

“We’re very proud of our girls for showing the fortitude needed to not let these diseases define them.” Hello families! My name is Mike Wiens, husband to Jesica and father to two girls, Vanessa 24 yrs old, and Sarah 23 yrs old. We’re happy to call Port Moody, BC our…

“Feelings and emotions are real, and should be felt and openly discussed.” Meet Kaese and his mom, Jennifer. Together, they have chosen to share their story of being diagnosed with JIA and the many impacts that can have on a child and family’s mental health. To read more Cassie + Friends’…

Macrophage Activation Syndrome (MAS) is severe inflammation of the immune system which can be associated with rheumatologic conditions such as Juvenile Idiopathic Arthritis (JIA). I was diagnosed with both conditions in October 2010.  My name is Gauri Raj and I am currently 21 years old. When I was 10 years…

In September of 2014, summer ended and our three daughters headed to back school – Anika into grade 4, Jaylene to grade 3 and Claire starting preschool. With school routines starting up again, life seemed back to normal. Then, out of the blue, Jaylene began complaining about a rash she…