New hope for kids living with arthritis in BC Interior thanks to replacement specialist clearing red tape and a special live-from-Nashville concert event benefiting Canadian Children’s Charities Penticton, British Columbia, May 18, 2021 – 97 South Song Sessions, the group behind Penticton’s summer songwriters festival of the same name (97SouthSongSessions.com), will produce and donate [...]
Macrophage Activation Syndrome (MAS) is severe inflammation of the immune system which can be associated with rheumatologic conditions such as Juvenile Idiopathic Arthritis (JIA). I was diagnosed with both conditions in October 2010. My name is Gauri Raj and I am currently 21 years old. When I was 10 years old, I had lost [...]
Cassie + Friends is joining other leading pain and pain-related organizations to support the recommendations of the #CanadianPainTaskForce and call for their implementation. Over the next week, we will be sharing some of the targeted recommendations laid out in “An Action Plan for Pain in Canada” and why they are important to kids, youth [...]
I am the proud mother to a vibrant 3.5-year-old, Émilie, who was diagnosed with Juvenile Idiopathic Arthritis (JIA) shortly before her second birthday. We were fortunate as a family to receive a diagnosis in a relatively rapid timeframe thanks to knowledge about navigating the health care system (I work as a nurse) and a [...]
Parenting is joyful, frustrating, rewarding and exhausting. Parenting a child with a chronic disease gives you a double dose of it all; you face challenges most parents never dream of. You juggle doctors, therapists, hospitals, insurance companies, pharmacies and the list goes on. Then there are the emotional and behavioural issues you deal with. [...]
Marissa has joined us on Team Cassie + Friend in the 2021 virtual run/walk for kids and families affected by juvenile arthritis. Read why she's stepping up for her daughter, Charlotte, and all youth affected by juvenile arthritis. When my daughter, Charlotte was just 2 years old, she had a big swollen toe. We [...]
Are you between 12 to 18 years of age with JIA? Consider participating in our study. What is the study about? We are testing a new online mentoring program to offer social support and self-management advice to adolescents with JIA. The program is part of an ongoing research study led by The Hospital for [...]
My name is Maryse Hendi, I am 18 years old, and I was diagnosed with Systemic Lupus Erythematosus (SLE) when I was 10 years old. What is SLE? More commonly known as Lupus, it is a disease in which the immune system is hyperactive and not only attacks disease-causing pathogens, but also the normal, [...]
How can we best transform the lives of youth affected by rheumatic diseases through Cassie + Friends? This March, in recognition of juvenile arthritis awareness month and #WORDDay, we hosted the very first Cassie + Friends Hackathon to get creative and collaborative around community-driven solutions that answer the question “How can we best transform [...]
Meet Oliver! A vibrant young boy with autoinflammatory disease living in Williams Lake, BC! Oliver has always been the type of child that brings joy to everyone around him. We couldn’t go to the grocery store without the smiling baby drawing everyone near. His first year of life was good. He was a perfectly [...]
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