To read in French click here. Things have been changing rapidly with respect to COVID-19 vaccines in Canada, as supply becomes more available, and we have more information about the safety of these vaccines, and risks of COVID-19 infection to people with autoimmune and autoinflammatory conditions. Rheumatology organizations, such as the Canadian Rheumatology Association [...]
“Every furrow of her brow makes me want to stop” If you have ever struggled to give your child an injection or to manage your child’s - or your own - emotions about their treatments, you are not alone! In the lead up to our Methotrexate session, we talked with Yvonne Brandelli, PhD Student, [...]
Meet Amy and Abby Mazzone - a mom and daughter duo who’ve been fighting JIA together, along with their family, for 12 years. As with many in our community, Methotrexate has played an important, yet, challenging role in their journey to find relief from pain and allow Abby to be a kid. Below, you [...]
In recognition of World yOung Rheumatic Disease (WORD) Day, we’re bringing together 16 youth, parents, and healthcare professionals to “hack” their way to innovative solutions to the question: How can we best transform the lives of youth affected by rheumatic diseases through Cassie + Friends? What is a Hackathon? Rooted in the concept of [...]
Dear Friends + Partners, As part of our advocacy for Juvenile Arthritis Awareness Month, I am pleased to let you know about a special editorial by Cassie + Friends appearing today in the Toronto Star newspaper and digitally on healthinsight.ca. Click here for a link to the full article. Your voice is so important [...]
Every three in 1000 Canadian children will be diagnosed with a rheumatic disease like Juvenile Arthritis, Lupus, Fever Syndromes, Vasculitis, JDM and more. Some will develop a related eye condition that, left untreated, can cause blindness. Up to 60% will have active disease into adulthood. This March, we’re asking you to stand with us [...]
Show your colours for #RareDiseaseDay "We’ve had dark moments and failed medications. We recognize how much harder our son has to work when he is flaring just to do normal things, like walk up the stairs, go to school, be with his friends." -Parent, Sara Ethier on her son who lives with TRAPS- a [...]
"Imagine that your 4-year-old wakes up and cannot move. And every basic function has their body locked down in paralysis... As a parent—what is going through your mind?" Click the link below to learn how the Matzke-French family from our pediatric rheumatology patient community found a way they could help prevent other families and [...]
He's better than he has been... Written by: Sara Ethier"I wrote this piece to share my son’s journey of living with a rare, one in a million Autoinflammatory Disease.Rare means that there is not a lot of research or treatment options available to children like my son who suffer. I appreciate the small steps [...]
Meet Mackenzie! Mackenzie Riddell is a 14 year old synchronized swimmer who was diagnosed with juvenile idiopathic rheumatoid arthritis (JIA) when she was 3 years old. On Saturday, January 30th (4:30 pm PST/7:30 pm EST), she will be sharing her story and advice for staying active at the upcoming Physical Activity with Rheumatic Disease [...]
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