Lupus

Daniela is an 18-year-old youth living with Systemic Lupus Erythematosus. In this piece, she shares her journey to diagnosis, the realities of growing up with a chronic illness, and how her experiences have shaped her passion for advocacy and helping others navigating childhood-onset rheumatic disease.

This World Lupus Day, we’re honoured to share a guest blog from one of our incredible youth mentors, Hunter. Diagnosed with lupus at just nine years old, Hunter faced more than most kids his age. Now at 24, Hunter works as a research assistant at SickKids Hospital in Toronto, helping…

Hello, my name is Queena, and I was diagnosed with Lupus and Juvenile Arthritis in 2021. During this time, it was hard to ask for help. For the most part my “illness” – or whatever was causing my swollen joints and excruciating pain – was invisible. It wasn’t until later…

“Hi, my name is Naina and I am 9 years old. This summer I was diagnosed with an autoimmune disease, Lupus. I hope to inspire kids like me to be brave and courageous. I want to spread the message that kids can get through anything with strength. Artwork has been…

For Lupus Awareness Month, we asked new C+F Board Member, Dr. Deborah Levy, to share five facts about childhood-onset Systemic Lupus Erythematosus (cSLE). Dr. Levy is the Clinical Director, Division of Rheumatology at the Hospital for Sick Children (“SickKids”) in Toronto and an Associate Professor of Pediatrics at the University…

My name is Maryse Hendi and I live in Calgary, AB. In 2012, at age 10, I was diagnosed with lupus. Lupus is a disease in which the immune system becomes hyperactive and attacks healthy tissue, joints, and organs in the body. On May 1st, I celebrated a milestone in…

My name is Maryse Hendi, I am 18 years old, and I was diagnosed with Systemic Lupus Erythematosus (SLE) when I was 10 years old.  What is SLE? More commonly known as Lupus, it is a disease in which the immune system is hyperactive and not only attacks disease-causing pathogens,…

May is Lupus Awareness Month and we reached out to our friend, Lia who is 13 years living with lupus, a rare autoimmune disease. After being diagnosed in 2018, Lia believes everything happens for a reason and there is always a positive in all events of life. Thank you, Lia,…

May is Lupus Awareness Month and we reached out to Dr. Lori Tucker of BC Children’s Hospital to learn more about this rare autoimmune disease. Thank you, Lori for providing us with this important information. By: Dr. Lori Tucker Systemic lupus erythematosus (also known as ‘lupus’ or SLE) is a…