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Fever Syndromes

My Life with PFAPA: Kai’s Story

We’re honoured to share a guest blog from one of our incredible youth in the community, Kai. Diagnosed with PFAPA at just seven years old, Kai faced more than most kids his age.

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Introducing Ian Stedman: Autoinflammatory patient and parent

In honour of Autoinflammatory month this August, we are introducing the members of Cassie + Friends’ new Canadian Systemic Autoinflammatory Patient Advisory Group (Can-SAID). We are beginning with autoinflammatory patient and parent and Can-SAID board chair, Ian Stedman. Ian Stedman is an autoinflammatory patient and parent. Always sick as a…

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Oliver’s Diagnostic Journey: Periodic Fever Syndromes

Meet Oliver! A vibrant young boy with autoinflammatory disease living in Williams Lake, BC! Oliver has always been the type of child that brings joy to everyone around him. We couldn’t go to the grocery store without the smiling baby drawing everyone near. His first year of life was good.…

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“He’s Better Than He Has Been…”

Written by: Sara Ethier “I wrote this piece to share my son’s journey of living with a rare, one in a million Autoinflammatory Disease. Rare means that there is not a lot of research or treatment options available to children like my son who suffer. I appreciate the small steps…

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