Throughout my life I have been granted many titles; mom, wife, daughter, registered nurse, and writer are just a few. These are the titles that are associated with my name. I could be described as outgoing, humorous, modest, and perhaps kind too. These would be some characteristics that people from a distance would use [...]
Inspired by the Roald Dahl Charity’s Marvellous Nurse Inventing Rooms, on August 23rd, we hosted our very own C+F Inventing Room to ask the community and together envision what our C+F Injection Coping Kits should include. With the help of medical experts, parents and youth, we dove in and got to work! We started [...]
We have been asking youth with rheumatic disease to share their story! Sharing stories helps build community and connections. We hope that Jenna’s amazing story inspires you to share your own story. My name is Jenna Kedy. I am 18 years old and live in Halifax, Nova Scotia. As a child, I was often [...]
In early 2022 we launched the Team Cassie + Friends Youth Ambassador program to support youth in raising awareness of JA and other rheumatic diseases within their school community. Soleil is one of our first Team C+F Youth Ambassadors! This month she will give a presentation to her entire school on Juvenile Arthritis and [...]
The Cassie + Friends Care & Research Network (CREW) launched in November 2021 as an opportunity for Pediatric Rheumatology clinics in Canada to access up to $15,000 in funding towards improving the care experience at their clinic or advancements in research. To kick off CREW, we've highlighted stories from members of our CREW - [...]
A vital part of the work we do at Cassie + Friends stems from our involvement in important research in the pediatric rheumatic (PR) disease community. Over the past decade, we’ve helped endow a research chair, fund a new international post-doc, build one of only three PR labs in Canada, launch a pain-app and [...]
I am the proud mother to a vibrant 3.5-year-old, Émilie, who was diagnosed with Juvenile Idiopathic Arthritis (JIA) shortly before her second birthday. We were fortunate as a family to receive a diagnosis in a relatively rapid timeframe thanks to knowledge about navigating the health care system (I work as a nurse) and a [...]
Parenting is joyful, frustrating, rewarding and exhausting. Parenting a child with a chronic disease gives you a double dose of it all; you face challenges most parents never dream of. You juggle doctors, therapists, hospitals, insurance companies, pharmacies and the list goes on. Then there are the emotional and behavioural issues you deal with. [...]
Medications There are many different medications used to treat and manage juvenile arthritis (JA) and other rheumatic diseases. Here are the main types of JA drugs and their generic names. Medications can be taken orally, by infusion, and some are administered by injection. Many families turn to Cassie [...]
Trish is an inspiring community leader and one who has already accomplished so much in her young life. Having completed her Bachelor's Degree in Commerce, she is now pursuing a Master's Degree in the Netherlands, demonstrating her unwavering dedication to her education and personal growth. Trish's unique life experiences have given her a diverse [...]
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