NEWS

#RareFinds w/ @DrPedsRheum Did you know it can take up to 17 years for research to trickle from journals and publications into your child’s clinic appointment?  When we heard the recent American College of Rheumatology (ACR) Meeting was a “big one for Pediatric Rheumatologists,” we wanted to know why. So…

his blog was originally posted by the Centre for Blood Research website on November 5, 2020 By Sarah Bowers, Junior Researcher, Brown Lab at BCCHRI As health researchers, many of us are familiar with the term “patient-oriented” research and recognize the value of engaging various stakeholders in the research process1. But what does patient-oriented…

Is your family beginning to think about the transition from pediatric to adult rheumatology care?  We spoke to one teen who talks about her diagnosis with rheumatic disease at age 14, and  how she’s been taking control of her condition two years later. This is a powerful read that offers…

Is your family prepared to make the move from Pediatric to adult rheumatology care? If you’re teen is graduating next year or in the near future, how can they go through the transition from pediatric to adult care as smoothly as possible? We connected with Morgan Harris who recently graduated…

Uveitis (inflammation of the eye) is a serious complication occurring in 20% of children with Juvenile Arthritis, a condition that is hard to diagnose without regular eye screening. Treatment of Uveitis can often be aggressive, sometimes calling for eye drops multiple times a day in order to prevent vision loss…

Trish is an inspiring community leader and one who has already accomplished so much in her young life. Having completed her Bachelor’s Degree in Commerce, she is now pursuing a Master’s Degree in the Netherlands, demonstrating her unwavering dedication to her education and personal growth. Trish’s unique life experiences have…

In Spring of 2018, my 6 year old daughter was complaining of neck pain.  It was mistaken as pain from her twice a week swimming lessons.  One morning in August that same year she asked me to look at her knee because it was really hurting.  I was shocked to…

Middle school and high school can take some time for everyone to get used to, especially if you are a student with arthritis. Larger schools with multiple classrooms, more teachers and classmates, and a heavy backpack full of textbooks, can make it a challenging environment to communicate with others about…

Autoinflammatory vs Autoimmune Diseases Coined less than 20 years ago, the word autoinflammatory is often confused with autoimmune—so, what’s the difference? When we think of the word autoimmune, most people understand that it means your body is attacking itself the way it attacks invaders, like bacteria and viruses. These autoimmune responses…

The Virtual Youth Panel event is now available for viewing on Youtube and IGTV. You’ll find timestamps of the video on Youtube to direct you to the questions/answers you’ll want to hear the most. This is an excellent resource to share with relatives, friends, sports coaches and teachers to help them understand life…

With August being Auto-inflammatory Awareness Month, we connected with Nicole Pereira to share her journey with a very rare form of Vasculitis called Adenosine Deaminase 2 Deficiency. After wondering why her legs were covered in bruises from simply watching TV, Nicole realized something was seriously wrong.Through the challenges, she’s learned…

Shortly after his 13th birthday, Emerson started experiencing a lot of pain and stiffness in his hands, knees and wrists. After a few months of doctors appointments and a lot of questions, he was diagnosed with Enthesitis-Related Arthritis, a type of arthritis that involves swelling and inflammation of the connective…