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Canada

Navigating Morphea – Michelle’s Story

Morphea, also known as localized Scleroderma, is an auto immune disease that causes hardened and darkened patches of skin on the face, hands, feet, or anywhere else on the body.

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Living with JIA – Lisa’s Journey

For those who are currently facing a new diagnosis, I encourage you to reach out and maximize your use of available resources

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Growing up with JDM – Layla’s experience

My experience with the healthcare system started earlier than most. I was diagnosed with Juvenile Dermatomyositis (JDM), a rare autoimmune disease that affects the muscles and skin, and since then, the Montreal Children’s Hospital has been a constant part of my life, a place where I’ve had many appointments, treatments,…

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#VirtuallyAnything

Are you ready to take action for kids living with Juvenile Arthritis (JA) and other rheumatic diseases? Make an immediate impact on childhood rheumatic diseases by doing #VirtuallyAnything to help raise awareness, fund research, and support families. The problem: Awareness of rheumatic conditions in youth is extremely low—only about 20% of Canadians are…

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A Year of Advocacy and Impact: Our 2024 Highlights

To have a chronic illness is to be fighting every day for the next. My name is Paige Simpson. I am 17 years old, I was diagnosed with Juvenile Idiopathic Arthritis, otherwise known as JIA. I have been treated for JIA for 15 years but have been battling this condition…

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A Canadian Registry for Autoinflammatory Diseases: The CAN-SAID Initiative

Great news for Canadian autoinflammatory patients of all ages: Canada is getting its own registry for systemic autoinflammatory diseases! What exactly is a systemic autoinflammatory disease? Systemic autoinflammatory diseases (SAID) currently include over 50 rare conditions that are caused by uncontrolled systemic and organ-specific inflammation. These disorders usually start in…

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