April 2024

Youth Mental Health Strategy Funding Announcement

By |April 10th, 2024|Advocacy, blog, Current Research, Future Research, Home Page, Mental Health, Mental Health (Caregivers), Mental Health (For Youth), News, Research|

Youth Mental Health Strategy Funding Announcement       NEWS RELEASE Two Canadian teams awarded new funding to study mental illness in youth with rheumatic diseases. Brain Canada and Cassie + Friends unveil the recipients of the Addressing Mental Health in Paediatric Rheumatic Diseases Team Grants program. Source: Brain Canada MONTREAL, April [...]

Bridging the Gap

By |April 2nd, 2024|blog|

bridging the gap improving lives through research, education, connection, and support We're living in a time of exciting progress, where scientific breakthroughs are paving the way for better care for children and families dealing with pediatric rheumatic diseases. Every day, dedicated researchers, including those in our CREW Network, are pushing the boundaries of rheumatology [...]

February 2024

Reine Hodroj – Rare Connection with Bechet’s Disease

By |February 2nd, 2024|blog, Rare Disease Stories, Stories|

Reine Hodroj - Learning to Live with Behcet's Disease Living with a chronic illness is an unimaginable challenge, and Behcet's Disease has been my constant companion in this journey. This rare autoimmune condition, characterized by recurrent oral and genital ulcers, skin lesions, and systemic inflammation, has disrupted my life in many ways. However, my [...]

November 2023

Mutlu Yilmaz: An RBC Intern to Team C+F Family Member

By |November 21st, 2023|blog, Stories, Uncategorized|

I graduated from the University of British Columbia in 2022 with a Bachelor of Science in Biology, with a focus in Genetics and Evolution. Shortly after graduating and working in a laboratory, I came to the realization I can make a bigger impact in healthcare and biotechnology by leveraging my scientific expertise to [...]

October 2023

Seeing Possibilities after Diagnosis: a Uveitis Story

By |October 24th, 2023|About JIA, Advice, Advocacy, blog, CREW, Rare Disease, Sask Stories, Stories, Uveitis|

Throughout my life I have been granted many titles; mom, wife, daughter, registered nurse, and writer are just a few. These are the titles that are associated with my name. I could be described as outgoing, humorous, modest, and perhaps kind too. These would be some characteristics that people from a distance would use [...]

OPT-JIA Premedication Trial

By |October 17th, 2023|blog, Current Research, Future Research, Injection, JIA, Medication, Research|

When I first heard of the medication Ondansetron, I couldn’t help but think about how its name sounded like a character from the Transformers movies. While this medication doesn’t fight space aliens or have a special effects budget, it does hold the capacity to TRANSFORM lives. How might you ask?Methotrexate is a [...]

August 2023

C+F Inventing Room: Reinventing the Injection Experience for Kids and Families Affected by JA and other childhood rheumatic diseases in Canada

By |August 31st, 2023|Advice, Advocacy, blog, Injection, Medication, Past Events|

Inspired by the Roald Dahl Charity’s Marvellous Nurse Inventing Rooms, on August 23rd, we hosted our very own C+F Inventing Room to ask the community and together envision what our C+F Injection Coping Kits should include. With the help of medical experts, parents and youth, we dove in and got to work! We started [...]

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