Rare Disease Day happens each year on the last day of February but we #CareForRare every day. We have been showing we #CareforRare by shining the spotlight on real-life stories from rare disease patients, parents, researchers, and healthcare professionals. Each story emphasizes the importance of building a community of support, collaborating around treatment [...]
On the way towards a pain free future, let's tackle one of the most difficult parts of pediatric rheumatic diseases - the injection experience. The treatments available for childhood rheumatic diseases like #JIA and #Lupus have significantly improved over time. Despite this, little has been done to address the often extreme anxiety and pain [...]
Community Connection Stories #ConnectingJA transforms Misinformation. "Cassie + Friends has been such a great resource for my husband and I, our son, and even Lily to understand the disease more." Parent of a child with JA, SK Help Transform [...]
"Throughout all of these experiences that I have had with Cassie + Friends, there is one throughline: Understanding. Understanding is a concept not to be underestimated." Meet Ciara. It was after after my body couldn’t row anymore, my hands couldn’t hold the pencil, my joints ached in pain, and after my diagnosis of [...]
One of our favourite things at Cassie + Friends is when kids step up and take action towards spreading awareness and fundraising for JIA and other rheumatic diseases. Our Calgary JIA warrior, Jason, is hosting the first kids fundraiser of the year- a pajama day at his school! Tickets will be sold, by donation, [...]
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