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Vasculitis

The Faces of Rare #RareDiseaseDay2021

Show your colours for #RareDiseaseDay “We’ve had dark moments and failed medications. We recognize how much harder our son has to work when he is flaring just to do normal things, like walk up the stairs, go to school, be with his friends.” -Parent, Sara Ethier on her son who…

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Autoinflammatory vs. Autoimmune – What’s the difference?

Autoinflammatory vs Autoimmune Diseases Coined less than 20 years ago, the word autoinflammatory is often confused with autoimmune—so, what’s the difference? When we think of the word autoimmune, most people understand that it means your body is attacking itself the way it attacks invaders, like bacteria and viruses. These autoimmune responses…

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My Journey with Rare Disease

With August being Auto-inflammatory Awareness Month, we connected with Nicole Pereira to share her journey with a very rare form of Vasculitis called Adenosine Deaminase 2 Deficiency. After wondering why her legs were covered in bruises from simply watching TV, Nicole realized something was seriously wrong.Through the challenges, she’s learned…

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