November 2021

October 2021

Learning to Live with JIA

By |October 5th, 2021|Current Events, JIA, Newly Diagnosed, Post- Secondary, Saskatchewan, Stories, Teen Transitions|

Hello,  My name is Emma Linsley, and I am from Saskatoon, Saskatchewan. When I was 15 years old, I was diagnosed with JIA. Along with needing to learn to manage the physical ailments of the disease, this diagnosis brought with it a complex set of other challenges that my support network and I would [...]

September 2021

My Medication Journey by Julie Beausoleil

By |September 1st, 2021|Injection, JIA, Stories|

Written by young adult JIA patient, Julie Beausoleil, this blog post was originally published by www.takeapaincheck.ca on June 29th, 2021. Take A Pain Check is a juvenile arthritis focussed podcast hosted by 18 year old Natasha Trehan, that provides a recognizable platform for youth and young adults to share their experience with arthritis in addition [...]

August 2021

From Clips to Cause: How one Windsor youth is giving back to the rheumatic disease community.

By |August 12th, 2021|Advocacy, JIA, London, Stories|

Hi, my name is Savannah and I am a second-year university student studying kinesiology and living in Windsor, Ontario. I was diagnosed in grade school with Juvenile Idiopathic Arthritis (JIA). A while ago, a member of my care team suggested I google Cassie + Friends to learn about the programs and resources offered for [...]

May 2021

Parenting a child with JIA: Fear, uncertainty, hope, and an endless list of questions

By |May 13th, 2021|Advice, JIA, Mental Health, Mental Health (Caregivers), Stories|

I am the proud mother to a vibrant 3.5-year-old, Émilie, who was diagnosed with Juvenile Idiopathic Arthritis (JIA) shortly before her second birthday. We were fortunate as a family to receive a diagnosis in a relatively rapid timeframe thanks to knowledge about navigating the health care system (I work as a nurse) and a [...]

The Story Behind the Session Putting on Your Life Jacket: Self-care for Caregivers, Parenting a Child with Chronic Disease, and more!

By |May 13th, 2021|Advice, Mental Health (Caregivers), Stories|

Parenting is joyful, frustrating, rewarding and exhausting. Parenting a child with a chronic disease gives you a double dose of it all; you face challenges most parents never dream of. You juggle doctors, therapists, hospitals, insurance companies, pharmacies and the list goes on. Then there are the emotional and behavioural issues you deal with.  [...]

April 2021

Lupus: What is it and how can you show your support this #LupusAwarenessMonth

By |April 30th, 2021|Lupus, Stories|

My name is Maryse Hendi, I am 18 years old, and I was diagnosed with Systemic Lupus Erythematosus (SLE) when I was 10 years old.  What is SLE? More commonly known as Lupus, it is a disease in which the immune system is hyperactive and not only attacks disease-causing pathogens, but also the normal, [...]

Oliver’s Diagnostic Journey: Periodic Fever Syndromes

By |April 15th, 2021|Fever Syndromes, Northern BC, Rare Disease Stories, Stories|

 Meet Oliver! A vibrant young boy with autoinflammatory disease living in Williams Lake, BC! Oliver has always been the type of child that brings joy to everyone around him. We couldn’t go to the grocery store without the smiling baby drawing everyone near. His first year of life was good. He was a perfectly [...]

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