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Patient Engagement in Research: A Youth Perspective

his blog was originally posted by the Centre for Blood Research website on November 5, 2020 By Sarah Bowers, Junior Researcher, Brown Lab at BCCHRI As health researchers, many of us are familiar with the term “patient-oriented” research and recognize the value of engaging various stakeholders in the research process1. But what does patient-oriented…

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Ask yourself… What do you know about JIA and other rheumatic disease research happening in Canada?

Moving Research Findings into Clinical Care  By: Dr. Elizabeth Stringer The Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) is a research network made up of pediatric rheumatologists and other researchers.  Past, present, and future research will lead to discovering new information about rheumatic conditions including long-term outcomes, medication side effects,…

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Mental Health Week 2020: Alison’s journey with mental health and arthritis

Alison Legge is a member of the Cassie + Friends Youth Leader Committee. She spoke at Cassie + Friends Family Day 2016 as a youth champion, speaking about the impact chronic disease has had on her mental health. A lot has happened since then, and Alison has learned she is…

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May is Lupus Awareness Month: What you need to know about this rare autoimmune disease.

May is Lupus Awareness Month and we reached out to Dr. Lori Tucker of BC Children’s Hospital to learn more about this rare autoimmune disease. Thank you, Lori for providing us with this important information. By: Dr. Lori Tucker Systemic lupus erythematosus (also known as ‘lupus’ or SLE) is a…

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Cassie + Friends Featured in the Toronto Star to Make Sure Kids Are Part of the Conversation

How have you felt seeing some of the familiar medications used to treat Juvenile Arthritis and other childhood rheumatic diseases, like Lupus, suddenly in the news? With clinical trials and major news articles now talking about treatments like Actemra and Plaquenil as potential answers to the COVID-19 pandemic, we want…

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250 kids, families and friends set to attend first Edmonton Family Day

“I am hoping our daughter will be able to meet other girls her age with arthritis.” “Willing to do anything to learn more about JIA.” “We are hoping to connect with other families that have been through the hard time of arthritis and are trying to have a normal childhood…

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Puppet show helps BC Interior parents fight loss of children’s arthritis care

Last month, Cassie and Friends’ Juvenile Arthritis at School Puppet Show hit the road to bring juvenile arthritis education to the Okanagan! The special puppet show, which was offered free-of-charge to schools by Cassie and Friends with support from a $10,000 grant from the Telus Friendly Futures Foundation, tells the story of Cassie…

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Camp Cassie and Friends: A Family Camp | Family Day 2018 Conference Program

Our annual Family Day conference for Juvenile Arthritis and other rheumatic diseases is in JUST ONE WEEK – and we can’t wait! On Saturday, October 13th, we’ll welcome over 370 kids, families and friends for a life-changing day of connection, learning and fun at the Delta Burnaby Conference Centre in…

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Reese’s Story: “I will never let JIA get in my way”

Thirteen year old Reese from Whitby, Ontario was diagnosed with JIA at age two, but she has never let this get in the way of her athletic goals. Read her story of perseverance and strength below, and join Reese and her entire Aurora Panthers Bantam AA hockey team on October 21st as they…

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PwC Canada Board Chair, Mike Harris, with family and friends at the 2017 Charity Challenge Run/Walk with Team Cassie and Friends.

FOR IMMEDIATE RELEASE:      PwC commits $10,000 to transform the futures of youth with arthritis June 21, 2018- VANCOUVER, BRITISH COLUMBIA: University Student, Alison Legge, 22, knows all too well just how painful studying, full-time work or even a casual, part-time job can be thanks to Juvenile Arthritis -…

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Thank you Keystone Environmental, Champion for Kids!

We are so excited to announce that long-time champion for kids Keystone Environmental Ltd. – BC’s go to environmental consulting firm and recently named Top Small & Medium Employer in Canada – has stepped up with a $15,000 gift to Team Cassie and Friends to help transform the lives of the 3 in 1000 children in BC…

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Nicola Wealth Management champions juvenile arthritis and supports one of their own

Giving back is deeply rooted in the culture of Vancouver-based Nicola Wealth Management, and this year the Nicola Wealth Gives Back Charitable Giving Committee is showing just how deep that commitment goes when it comes to supporting both kids with arthritis, and their own staff.  Cassie and Friends is pleased to announce Nicola Wealth as our new “Champion…

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