Advocacy

“We’re very proud of our girls for showing the fortitude needed to not let these diseases define them.” Hello families! My name is Mike Wiens, husband to Jesica and father to two girls, Vanessa 24 yrs old, and Sarah 23 yrs old. We’re happy to call Port Moody, BC our…

“Feelings and emotions are real, and should be felt and openly discussed.” Meet Kaese and his mom, Jennifer. Together, they have chosen to share their story of being diagnosed with JIA and the many impacts that can have on a child and family’s mental health. To read more Cassie + Friends’…

This article was written and reviewed by the Cassie + Friends Medical Advisory Committee made up of Dr. Roberta Berard (London Health Sciences Centre), Dr. Nadia Luca (Alberta Children’s Hospital) and Dr. Lori Tucker (BC Children’s Hospital). To learn more about the Cassie + Friends Medical Advisory Committee, click here. Some…

6.5 million people are affected by arthritis in Canada and about 24,000 of them are children. Cassie + Friends is just for them. Kids like Audrey (pictured right) – diagnosed at just 18 months – need our help to make sure their health and futures are a priority, even beyond…

Hi, my name is Savannah and I am a second-year university student studying kinesiology and living in Windsor, Ontario. I was diagnosed in grade school with Juvenile Idiopathic Arthritis (JIA). A while ago, a member of my care team suggested I google Cassie + Friends to learn about the programs…

Macrophage Activation Syndrome (MAS) is severe inflammation of the immune system which can be associated with rheumatologic conditions such as Juvenile Idiopathic Arthritis (JIA). I was diagnosed with both conditions in October 2010.  My name is Gauri Raj and I am currently 21 years old. When I was 10 years…

How can we best transform the lives of youth affected by rheumatic diseases through Cassie + Friends? This March, in recognition of juvenile arthritis awareness month and #WORDDay, we hosted the very first Cassie + Friends Hackathon to get creative and collaborative around community-driven solutions that answer the question “How can we…

Dear Friends + Partners, As part of our advocacy for Juvenile Arthritis Awareness Month, I am pleased to let you know about a special editorial by Cassie + Friends appearing today in the Toronto Star newspaper and digitally on healthinsight.ca. Click here for a link to the full article. Your voice is…

Did you know that March is Juvenile Arthritis Awareness Month in Canada? Here at Cassie + Friends, we have been raising awareness and providing support to the JA community since 2007! We are the only charity in Canada exclusively dedicated to the pediatric rheumatic disease community and our dedication shows!…

Show your colours for #RareDiseaseDay “We’ve had dark moments and failed medications. We recognize how much harder our son has to work when he is flaring just to do normal things, like walk up the stairs, go to school, be with his friends.” -Parent, Sara Ethier on her son who…

Autoinflammatory vs Autoimmune Diseases Coined less than 20 years ago, the word autoinflammatory is often confused with autoimmune—so, what’s the difference? When we think of the word autoimmune, most people understand that it means your body is attacking itself the way it attacks invaders, like bacteria and viruses. These autoimmune responses…

How have you felt seeing some of the familiar medications used to treat Juvenile Arthritis and other childhood rheumatic diseases, like Lupus, suddenly in the news? With clinical trials and major news articles now talking about treatments like Actemra and Plaquenil as potential answers to the COVID-19 pandemic, we want…