Patient Engagement in Research: A Youth Perspective

By |November 6th, 2020|News|

This blog was originally posted by the Centre for Blood Research website on November 5, 2020 By Sarah Bowers, Junior Researcher, Brown Lab at BCCHRI As health researchers, many of us are familiar with the term “patient-oriented” research and recognize the value of engaging various stakeholders in the research process1. But what does patient-oriented research look [...]

JIA My Way: How one teen is taking charge of her arthritis

By |October 29th, 2020|High School, JIA, School Toolkit, Stories, Teen Transitions|

Is your family beginning to think about the transition from pediatric to adult rheumatology care?  We spoke to one teen who talks about her diagnosis with rheumatic disease at age 14, and  how she's been taking control of her condition two years later. This is a powerful read that offers a few starting points [...]

Becki Zerr: No Stranger to JA and Uveitis

By |October 22nd, 2020|Saskatchewan, Stories, Uveitis|

Uveitis (inflammation of the eye) is a serious complication occurring in 20% of children with Juvenile Arthritis, a condition that is hard to diagnose without regular eye screening. Treatment of Uveitis can often be aggressive, sometimes calling for eye drops multiple times a day in order to prevent vision loss and permanent damage to [...]

Diagnosed. By Trish Peters

By |October 13th, 2020|Advice, Current Events, High School, Home Page, Newly Diagnosed, Post- Secondary, School Toolkit, Stories, Teen Transitions, Virtual Youth Panel, YLN|

Trish is an inspiring community leader and one who has already accomplished so much in her young life. Having completed her Bachelor's Degree in Commerce, she is now pursuing a Master's Degree in the Netherlands, demonstrating her unwavering dedication to her education and personal growth. Trish's unique life experiences have given her a diverse [...]

Team C+ F is Lacing up for the Home Stretch!

By |September 11th, 2020|Current Events, Scotiabank Charity Challenge|

The Scotiabank Home Stretch is on!  As we near the finish line of the Calgary and Vancouver 2020 virtual runs, we’d like to sincerely  thank all 160+ runners and 673 donors who’ve stepped up for a pain-free future for kids with Team Cassie + Friends!  With 2019 on record as our strongest year yet [...]

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