August 2020

Autoinflammatory vs. Autoimmune – What’s the difference?

By |August 19th, 2020|Advocacy, Blog, Home Page, MAS, Rare Disease, Rare Disease Stories, Research, Resources, Stories, Vasculitis|

Autoinflammatory vs Autoimmune Diseases Coined less than 20 years ago, the word autoinflammatory is often confused with autoimmune—so, what’s the difference? When we think of the word autoimmune, most people understand that it means your body is attacking itself the way it attacks invaders, like bacteria and viruses. These autoimmune responses run on a [...]

July 2020

Self-care, self-injections, and other self-management tips from our youth panelists.

By |July 30th, 2020|Advice, Mental Health, Pain Tips, Teen Transitions, Virtual Youth Panel|

The Virtual Youth Panel event is now available for viewing on Youtube and IGTV. You'll find timestamps of the video on Youtube to direct you to the questions/answers you'll want to hear the most. This is an excellent resource to share with relatives, friends, sports coaches and teachers to help them understand life with [...]

June 2020

Emerson’s Story: “ERA won’t take over my life”

By |June 24th, 2020|Physical Activity, Stories|

Shortly after his 13th birthday, Emerson started experiencing a lot of pain and stiffness in his hands, knees and wrists. After a few months of doctors appointments and a lot of questions, he was diagnosed with Enthesitis-Related Arthritis, a type of arthritis that involves swelling and inflammation of the connective tissue that attaches to [...]

May 2020

Champion for Kids: Meet Alexis of Team Cassie + Friends

By |May 27th, 2020|Stories|

Our Friend, Alexis, of Sherwood Park, AB is running in the virtual Calgary Marathon and Scotiabank Charity Challenge with Team Cassie + Friends. Alexis is passionate about creating videos and spreading awareness of JIA. Read her story and why she’s running for the 24,000 kids in Canada with juvenile arthritis and other rheumatic disease. [...]

Mental Health Week 2020: Alison’s journey with mental health and arthritis

By |May 7th, 2020|Mental Health, News, Teen Transitions, TMJ|

Alison Legge is a member of the Cassie + Friends Youth Leader Committee. She spoke at Cassie + Friends Family Day 2016 as a youth champion, speaking about the impact chronic disease has had on her mental health. A lot has happened since then, and Alison has learned she is not alone and there [...]

Lia vs. Lupus

By |May 1st, 2020|Lupus, Stories|

May is Lupus Awareness Month and we reached out to our friend, Lia who is 13 years living with lupus, a rare autoimmune disease. After being diagnosed in 2018, Lia believes everything happens for a reason and there is always a positive in all events of life. [...]

May is Lupus Awareness Month: What you need to know about this rare autoimmune disease.

By |May 1st, 2020|Lupus, News|

May is Lupus Awareness Month and we reached out to Dr. Lori Tucker of BC Children's Hospital to learn more about this rare autoimmune disease. Thank you, Lori for providing us with this important information. By: Dr. Lori Tucker Systemic lupus erythematosus (also known as ‘lupus’ or SLE) is a rare autoimmune disease.  It [...]

February 2020

Meet Kaitlyn!

By |February 15th, 2020|London, Stories|

This is Kaitlyn - a karate-and-hiking-loving 9 year old. When Kaitlyn was five and a half years old her hands became so swollen that it concerned her parents. She told her parents that she was having on-and-off ankle pain. After months of looking for answers and visiting multiple doctors, Kaitlyn’s parents were referred to London’s [...]

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