Parenting is joyful, frustrating, rewarding and exhausting. Parenting a child with a chronic disease gives you a double dose of it all; you face challenges most parents never dream of. You juggle doctors, therapists, hospitals, insurance companies, pharmacies and the list goes on. Then there are the emotional and behavioural issues you deal with. [...]
To read in French click here. Things have been changing rapidly with respect to COVID-19 vaccines in Canada, as supply becomes more available, and we have more information about the safety of these vaccines, and risks of COVID-19 infection to people with autoimmune and autoinflammatory conditions. Rheumatology organizations, such as the Canadian Rheumatology Association [...]
“Every furrow of her brow makes me want to stop” If you have ever struggled to give your child an injection or to manage your child’s - or your own - emotions about their treatments, you are not alone! In the lead up to our Methotrexate session, we talked with Yvonne Brandelli, PhD Student, [...]
In recognition of World yOung Rheumatic Disease (WORD) Day, we’re bringing together 16 youth, parents, and healthcare professionals to “hack” their way to innovative solutions to the question: How can we best transform the lives of youth affected by rheumatic diseases through Cassie + Friends? What is a Hackathon? Rooted in the concept of [...]
Meet Mackenzie! Mackenzie Riddell is a 14 year old synchronized swimmer who was diagnosed with juvenile idiopathic rheumatoid arthritis (JIA) when she was 3 years old. On Saturday, January 30th (4:30 pm PST/7:30 pm EST), she will be sharing her story and advice for staying active at the upcoming Physical Activity with Rheumatic Disease [...]
What is Uveitis? Uveitis is an inflammation inside the eye that can reduce vision. Uveitis happens with only some forms of JIA, but it is more common in children with oligoarticular arthritis. Uveitis is not related to how active JIA is. The joints can be inflamed and painful while the eyes are fine. [...]
Middle school and high school can take some time for everyone to get used to, especially if you are a student with arthritis. Larger schools with multiple classrooms, more teachers and classmates, and a heavy backpack full of textbooks, can make it a challenging environment to communicate with others about your arthritis pain and [...]
hear it from kids first, what is JIA? Juvenile idiopathic arthritis (JIA) is the newest and preferred terminology to describe chronic arthritis in children. The disease is also sometimes referred to as juvenile arthritis (JA) or juvenile rheumatoid arthritis (JRA). Let's Break Down the Terminology.... Juvenile - In a young person (usually under [...]
Autoinflammatory vs Autoimmune Diseases Coined less than 20 years ago, the word autoinflammatory is often confused with autoimmune—so, what’s the difference? When we think of the word autoimmune, most people understand that it means your body is attacking itself the way it attacks invaders, like bacteria and viruses. These autoimmune responses run on a [...]
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