The Cassie + Friends Care and Research Network (CREW) is a bold next step in our vision of a pain-free future for all kids with juvenile arthritis and other rheumatic diseases. About the Cassie + Friends Care and Research Network (CREW) Our CREW is made up of youth, parents, pediatric rheumatology teams, answer-seeking champions [...]
We need 319 youth and parents to help us understand how we can best support kids and families to be RESILIENT in the face of Juvenile Arthritis. Take the survey to share your experiences now: JIA Survey If you’re like many youth and parents in our community, managing the pain [...]
Will you join Dr. Batthish as part of our CREW? In anticipation of #GivingTuesday, we’re very excited to introduce you to Dr. Michelle Batthish, our new Research Chair and one of the driving forces behind the Cassie + Friends Care and Research Network - or CREW for short! Read below why Dr. Batthish urges [...]
C+F Research Partner Highlight: The Brown Lab at BC Children's Hospital Research Institute in Vancouver, BC. With your help, Cassie + Friends has now invested nearly $500,000 in the Brown Lab in support of their work to discover less invasive tests and more precise treatments for children affected by juvenile arthritis and other rheumatic diseases, [...]
A vital part of the work we do at Cassie + Friends stems from our involvement in important research in the pediatric rheumatic (PR) disease community. Over the past decade, we’ve helped endow a research chair, fund a new international post-doc, build one of only three PR labs in Canada, launch a pain-app and [...]
Are you between 12 to 18 years of age with JIA? Consider participating in our study. What is the study about? We are testing a new online mentoring program to offer social support and self-management advice to adolescents with JIA. The program is part of an ongoing research study led by The Hospital for [...]
“Every furrow of her brow makes me want to stop” If you have ever struggled to give your child an injection or to manage your child’s - or your own - emotions about their treatments, you are not alone! In the lead up to our Methotrexate session, we talked with Yvonne Brandelli, PhD Student, [...]
"Imagine that your 4-year-old wakes up and cannot move. And every basic function has their body locked down in paralysis... As a parent—what is going through your mind?" Click the link below to learn how the Matzke-French family from our pediatric rheumatology patient community found a way they could help prevent other families and [...]
#RareFinds w/ @DrPedsRheum Did you know it can take up to 17 years for research to trickle from journals and publications into your child’s clinic appointment? When we heard the recent American College of Rheumatology (ACR) Meeting was a “big one for Pediatric Rheumatologists,” we wanted to know why. So we asked Dr. Herman [...]
Learn about the JIA-PaCER 2021 Program In a partnership between UCAN CAN-DU, Cassie + Friends Society and the University of Calgary Continuing Education, JIA-PaCER was a 12-month, part-time, fully-funded, virtual program where applicants learned alongside other youth about how to conduct research with, by and for patients in their communities. At the end of the [...]
If you or a loved one is dealing with Juvenile Arthritis or any rheumatic disease, you're not alone. Sign up now for access to vital resources, news, and events. Join a supportive community that gets what you're facing. Together, we can make a difference in your Juvenile Arthritis journey.
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