February 2025

Where Are They Now: Zahra’s Story

By |February 18th, 2025|Blog, Ontario, Rare Disease, Stories, Toronto, Where Are They Now?|

Where Are They Now: Zahra's Story In this special Rare Disease Month edition of “Where Are They Now”, we caught up with Zahra Alidina. In 2023, Zahra shared what life was like living with an autoinflammatory disease that is so rare it doesn’t even have a name. We’re so honoured to share this [...]

From Patient to Pediatric Rheumatologist: Dr. Molly Dushnicky

By |February 10th, 2025|Advice, Blog, Hamilton, JIA, Ontario, Research, Stories, Work + Careers|

From Patient to Pediatric Rheumatologist: Dr. Molly Dushnicky Dr. Molly Dushnicky’s story sounds like a lot of her patients’: When she was just 18 months old, she stopped walking, her knees wouldn’t bend easily, and she wasn’t her usual happy self. That’s when she was diagnosed with Juvenile Idiopathic Arthritis [...]

January 2025

Raising Awareness, Sharing Hope: One Family’s Journey with SJIA

By |January 8th, 2025|Advocacy, Blog, Kitchener-Waterloo, Ontario, sJIA, Stories, Volunteer|

Raising Awareness, Sharing Hope: One Family’s Journey with SJIA We’re so excited to introduce Tamara Schnarr, one of our new parent ambassadors for the Kitchener-Waterloo region! Tamara, a Realtor with a background in marketing, graphic design, and event management, is passionate about giving back to her [...]

October 2024

Introducing Our New Parent Ambassadors!

By |October 17th, 2024|Blog, Canada, Fundraising, Hamilton, Ontario, Toronto, Volunteer|

We are so excited to introduce you to our newest parent ambassadors, Tamara and Bobby-Jo, from our McMaster and SickKids centres! Our parent ambassadors are often the first point of contact for newly diagnosed families and are there for anyone who might be struggling or need a hand finding resources. They [...]

Building Community and Mental Health Support for Students with Rheumatic Diseases: Ciara’s Story

By |October 10th, 2024|Blog, Mental Health, Mental Health (For Youth), Ontario, Resources, Stories, Toronto|

Building Community and Mental Health Support for Students with Rheumatic Diseases: Ciara’s Story Living with a chronic condition like a rheumatic disease can be especially challenging for young people, not only physically but also mentally. It's no surprise that 40% of youth diagnosed with a rheumatic disease experience symptoms of anxiety, depression, or [...]

#WhyIRun – Audrey’s Story

By |October 2nd, 2024|#WhyIRun, Blog, Hamilton, JIA, Ontario, Stories|

#WhyIRun – Audrey’s Story In this #WhyIRun, we hear from the Rose family, who share their daughter Audrey’s journey with Juvenile Idiopathic Arthritis (JIA). Audrey and her family will be participating in our upcoming run/walk at Hamilton’s Road2Hope marathon on November 2, 2024, where they are not only the top fundraiser for [...]

September 2024

What I wish people knew about living with Ankylosing Spondylitis

By |September 1st, 2024|Blog, Ontario, Rare Disease Stories, Stories, Toronto|

In my 7 years of living with Ankylosing Spondylitis since the age of 21, I’ve had to teach a lot of people quite a few things about my illness. It’s a relatively unheard-of form of arthritis in day-to-day life. Most people have heard of Rheumatoid Arthritis, but not usually [...]

August 2024

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