Comfort for a Cause: Jason’s Pajama Day School Fundraiser

By |March 16th, 2023|fundraising, Stories|

One of our favourite things at Cassie + Friends is when kids step up and take action towards spreading awareness and fundraising for JIA and other rheumatic diseases. Our Calgary JIA warrior, Jason, is hosting the first kids fundraiser of the year- a pajama day at his school! Tickets will be sold, by donation, [...]

JIA, Turner Syndrome, Medication and Being a Teen: Alyssa’s Story

By |March 6th, 2023|Rare Disease Stories, Stories|

To recognize Juvenile Arthritis Awareness month, we're highlighting stories from the youth in our community: their diagnosis, their journeys, what they’ve learned, and most importantly, their advice. At Cassie + Friends, we believe that all kids deserve to live pain-free. In Canada, 24,000 children, teens and their families will be affected by Juvenile [...]

Medication Update for Canadian Pediatric Rheumatology Families: COVID Vaccine Response in Children with Autoimmune Disease

By |February 17th, 2023|Research|

COVID-19 Vaccination Study Children's Healthcare Canada and ScienceUpFirst, with funding from the Public Health Agency of Canada, have declared February 23, 2023, to be National Kids and Vaccines Day 2023. As such, we wanted to bring you an important update from our research partners, the [...]

My disease is so rare I don’t yet have a diagnosis.

By |February 15th, 2023|Stories|

To recognize rare disease day, we want to shine a light on all rare diseases, including the story of Zahra, whose rare autoinflammatory disease is still unknown, despite extensive genetic testing. Rare diseases affect 300 million people worldwide, and many of the 24,000 children in Canada in the pediatric rheumatic disease community are [...]

A Mothers Thank You

By |February 13th, 2023|Stories|

We would like to share a message from one of our Cassie + Friends families whose journey with Juvenile Arthritis has been made just a little bit easier, thanks to donors and friends like you.   My 5 year old daughter, Eve and I are thankful for your constant support. Eve was diagnosed [...]

It’s Not Easy Being Rare: Working Together to Navigate the Challenges of Systemic Autoinflammatory Diseases

By |February 9th, 2023|blog, News, Rare Disease Stories, Stories|

It is not easy being rare. Being rare means that there is not a lot of knowledge, research, and treatment options available for youth and families affected by systemic autoinflammatory diseases (SAIDs). And that is exactly what the recently formed Can-SAID advisory group, a branch of Cassie + Friends (C+F), wants to change. [...]

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