August 2023

C+F Inventing Room: Reinventing the Injection Experience for Kids and Families Affected by JA and other childhood rheumatic diseases in Canada

By |August 31st, 2023|Advice, Advocacy, Blog, Injection, Medication|

Inspired by the Roald Dahl Charity’s Marvellous Nurse Inventing Rooms, on August 23rd, we hosted our very own C+F Inventing Room to ask the community and together envision what our C+F Injection Coping Kits should include. With the help of medical experts, parents and youth, we dove in and got to work! We started [...]

September 2022

October 2021

Learning to Live with JIA

By |October 5th, 2021|Current Events, JIA, Newly Diagnosed, Post- Secondary, Saskatchewan, Stories, Teen Transitions|

Hello,  My name is Emma Linsley, and I am from Saskatoon, Saskatchewan. When I was 15 years old, I was diagnosed with JIA. Along with needing to learn to manage the physical ailments of the disease, this diagnosis brought with it a complex set of other challenges that my support network and I would [...]

August 2021

Arthritis Awareness Month: Let’s Make Juvenile Arthritis a National Priority.

By |August 30th, 2021|Advocacy, Current Events, News|

6.5 million people are affected by arthritis in Canada and about 24,000 of them are children. Cassie + Friends is just for them. Kids like Audrey (pictured right) - diagnosed at just 18 months - need our help to make sure their health and futures are a priority, even beyond the dedicated care from [...]

May 2021

Parenting a child with JIA: Fear, uncertainty, hope, and an endless list of questions

By |May 13th, 2021|Advice, JIA, Mental Health, Mental Health (Caregivers), Stories|

I am the proud mother to a vibrant 3.5-year-old, Émilie, who was diagnosed with Juvenile Idiopathic Arthritis (JIA) shortly before her second birthday. We were fortunate as a family to receive a diagnosis in a relatively rapid timeframe thanks to knowledge about navigating the health care system (I work as a nurse) and a [...]

March 2021

Toronto Star: Is a Pain-Free Future in Reach for kids with Arthritis?

By |March 15th, 2021|Advocacy, Current Events, Home Page|

Dear Friends + Partners, As part of our advocacy for Juvenile Arthritis Awareness Month, I am pleased to let you know about a special editorial by Cassie + Friends appearing today in the Toronto Star newspaper and digitally on healthinsight.ca. Click here for a link to the full article. Your voice is so important [...]

May 2019

250 kids, families and friends set to attend first Edmonton Family Day

By |May 1st, 2019|Family Day, News|

"I am hoping our daughter will be able to meet other girls her age with arthritis." "Willing to do anything to learn more about JIA." "We are hoping to connect with other families that have been through the hard time of arthritis and are trying to have a normal childhood for their child." "Oh [...]

April 2019

UCAN Ride4Kids (Day 1 to 3) – Updates from the Road from Dr. Jaime Guzman

By |April 29th, 2019|Advocacy, Current Events, Research, UCAN Ride4Kids|

Day 1 Under clear skies and magnificent views of the Lake Louise Glacier an intrepid group of riders representing Canada, Germany, Italy, Mexico and The Netherlands started the 2019 UCAN Ride4Kids. Attendants to the Childhood Arthritis and Beyond Conference enthusiastically bid farewell to the riders and after an inspiring speech by David Porte, Chairman [...]

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