Inspired by the Roald Dahl Charity’s Marvellous Nurse Inventing Rooms, on August 23rd, we hosted our very own C+F Inventing Room to ask the community and together envision what our C+F Injection Coping Kits should include. With the help of medical experts, parents and youth, we dove in and got to work! We started [...]
"I am hoping our daughter will be able to meet other girls her age with arthritis." "Willing to do anything to learn more about JIA." "We are hoping to connect with other families that have been through the hard time of arthritis and are trying to have a normal childhood for their child." "Oh [...]
Day 1 Under clear skies and magnificent views of the Lake Louise Glacier an intrepid group of riders representing Canada, Germany, Italy, Mexico and The Netherlands started the 2019 UCAN Ride4Kids. Attendants to the Childhood Arthritis and Beyond Conference enthusiastically bid farewell to the riders and after an inspiring speech by David Porte, Chairman [...]
Author: Zoya Jiwa, YLC Program Designer and founder of As We Are Style - a blog about facing health challenges with courage and style. Last weekend, Cassie + Friends’ Youth Leadership Committee got together for our first team retreat on a surprisingly sunny afternoon (thank you, Vancouver!) with a lot of excitement and a BIG [...]
Last month, Cassie and Friends' Juvenile Arthritis at School Puppet Show hit the road to bring juvenile arthritis education to the Okanagan! The special puppet show, which was offered free-of-charge to schools by Cassie and Friends with support from a $10,000 grant from the Telus Friendly Futures Foundation, tells the story of Cassie - a [...]
My daughter Elena was diagnosed with Juvenile Arthritis at age 2. Arthritis? That was an elderly person’s disease, I thought. I had no idea the depth of the disease or what would lie ahead for us. First, she started with redness and swelling in her knees. I took her into the doctor and they [...]
For many children with JIA or other rheumatic diseases, physical challenges at school can be huge barriers, particularly when it comes to gym class. In a recent study, researchers found that 38% of kids with JIA were unable to participate in gym with their peers. Paired with misunderstanding and lack of knowledge on the [...]
For those of us who live each day affected by juvenile arthritis or another rheumatic disease, it can often feel like there is no one who can understand what we are going through. Although this can feel isolating, when we share our juvenile arthritis and other rheumatic disease stories with one another they show [...]
As stressful and painful as experiencing a flare can already be at home, the idea of travelling with a flare may sometimes seem downright impossible. With some help however, you and your child can still enjoy taking a trip together. These are Cassie and Friends community member and mother Tanya Cassidy Irwin's three tips for [...]
Tanya Cassidy Irwin is a mother and Cassie and Friends community member from Langley, BC. This is her story of navigating pain, travel, medication and the unknown throughout her daughter Emily's journey with Oligoarticular JIA. In September 2015 there was the most subtle of hitches in our daughter Emily's step. Within three weeks she [...]
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