Radiant Resilience: Isla the JDM Warrior

By |August 4th, 2024|Blog, JDM, Ontario, Rare Disease, Rare Disease Stories, Stories, Toronto|

Radiant Resilience: Isla the JDM Warrior It was fall of 2021 and Isla was 6 years old. Her life was pretty much centred around her unwavering excitement for Halloween and being able to wear her unicorn costume to go trick-or-treating with her best friend, Alice. Over the month of October, [...]

Fuelled by Purpose: Juvenile Arthritis Mom and Local Entrepreneur Accelerates Race to a Cure

By |July 23rd, 2024|Current Events, Fundraising, JIA, Ontario, Stories|

Fuelled by Purpose Juvenile Arthritis Mom and Local Entrepreneur Accelerates Race to a Cure Alana Hurov’s daughter, Katherine, was diagnosed with Polyarticular Juvenile Idiopathic Arthritis (JIA) at just two years old. Katherine's journey, like that of many children battling rheumatic diseases, has been challenging yet marked by her remarkable [...]

#WhyIRun – Lillian, Our Rheumatic Disease Warrior

By |June 19th, 2024|#WhyIRun, Ontario, Ottawa, sJIA, Stories|

#WhyIRun For Lillian - Our Rheumatic Disease Warrior Our journey with Rheumatic Disease began in June 2022. After 11 days of fever, Lillian, then just shy of her 3rd birthday, was seen, diagnosed, and treated for Incomplete Kawasaki disease at CHEO (Children’s Hospital of Eastern Ontario). Luckily, she responded to the IVIG treatment and [...]

Youth Mental Health Strategy Funding Announcement

By |April 10th, 2024|Advocacy, Blog, Current Research, Future Research, Home Page, Mental Health, Mental Health (Caregivers), Mental Health (For Youth), News, Research|

Youth Mental Health Strategy Funding Announcement       NEWS RELEASE Two Canadian teams awarded new funding to study mental illness in youth with rheumatic diseases. Brain Canada and Cassie + Friends unveil the recipients of the Addressing Mental Health in Paediatric Rheumatic Diseases Team Grants program. Source: Brain Canada MONTREAL, April [...]

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