Are you between 12 to 18 years of age with JIA? Consider participating in our study. What is the study about? We are testing a new online mentoring program to offer social support and self-management advice to adolescents with JIA. The program is part of an ongoing research study led by The Hospital for [...]
My name is Maryse Hendi, I am 18 years old, and I was diagnosed with Systemic Lupus Erythematosus (SLE) when I was 10 years old. What is SLE? More commonly known as Lupus, it is a disease in which the immune system is hyperactive and not only attacks disease-causing pathogens, but also the normal, [...]
How can we best transform the lives of youth affected by rheumatic diseases through Cassie + Friends? This March, in recognition of juvenile arthritis awareness month and #WORDDay, we hosted the very first Cassie + Friends Hackathon to get creative and collaborative around community-driven solutions that answer the question “How can we best transform [...]
Meet Oliver! A vibrant young boy with autoinflammatory disease living in Williams Lake, BC! Oliver has always been the type of child that brings joy to everyone around him. We couldn’t go to the grocery store without the smiling baby drawing everyone near. His first year of life was good. He was a perfectly [...]
To read in French click here. Things have been changing rapidly with respect to COVID-19 vaccines in Canada, as supply becomes more available, and we have more information about the safety of these vaccines, and risks of COVID-19 infection to people with autoimmune and autoinflammatory conditions. Rheumatology organizations, such as the Canadian Rheumatology Association [...]
“Every furrow of her brow makes me want to stop” If you have ever struggled to give your child an injection or to manage your child’s - or your own - emotions about their treatments, you are not alone! In the lead up to our Methotrexate session, we talked with Yvonne Brandelli, PhD Student, [...]
Meet Amy and Abby Mazzone - a mom and daughter duo who’ve been fighting JIA together, along with their family, for 12 years. As with many in our community, Methotrexate has played an important, yet, challenging role in their journey to find relief from pain and allow Abby to be a kid. Below, you [...]
In recognition of World yOung Rheumatic Disease (WORD) Day, we’re bringing together 16 youth, parents, and healthcare professionals to “hack” their way to innovative solutions to the question: How can we best transform the lives of youth affected by rheumatic diseases through Cassie + Friends? What is a Hackathon? Rooted in the concept of [...]
Dear Friends + Partners, As part of our advocacy for Juvenile Arthritis Awareness Month, I am pleased to let you know about a special editorial by Cassie + Friends appearing today in the Toronto Star newspaper and digitally on healthinsight.ca. Click here for a link to the full article. Your voice is so important [...]
Every three in 1000 Canadian children will be diagnosed with a rheumatic disease like Juvenile Arthritis, Lupus, Fever Syndromes, Vasculitis, JDM and more. Some will develop a related eye condition that, left untreated, can cause blindness. Up to 60% will have active disease into adulthood. This March, we’re asking you to stand with us [...]
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