Navigating Morphea – Michelle’s Story

By |July 15th, 2025|#KidsCantWait, Advice, Blog, Canada, Methotrexate, Morphea, Ontario, Rare Disease Stories, Stories, Toronto|

Navigating Morphea – Michelle’s Story For most of my life, I’ve had Morphea. Starting as a red mark on my chin as a young child, it eventually turned darker and over the years, spread to areas on my forehead, and neck. Morphea, also known as localized Scleroderma, is [...]

Growing up with JDM – Layla’s experience

By |June 6th, 2025|Advice, Blog, Canada, JDM, Montreal, Quebec, Stories|

Growing up with JDM - Layla’s experience My experience with the healthcare system started earlier than most. I was diagnosed with Juvenile Dermatomyositis (JDM), a rare autoimmune disease that affects the muscles and skin, and since then, the Montreal Children’s Hospital has been a constant part of my life, [...]

Still Shining: Ava’s Journey with Juvenile Ankylosing Spondylitis

By |May 15th, 2025|Blog, Saskatchewan, Stories|

Still Shining: Ava’s Journey with Juvenile Ankylosing Spondylitis May is Ankylosing Spondylitis (AS) Awareness Month. Many people think of AS as a condition that affects adults, but it can begin in childhood, too. Ava’s story is a powerful reminder of the resilience of kids living with Juvenile Ankylosing Spondylitis and the importance of [...]

#WhyIRun: Stephanie + Tommy’s Story

By |May 11th, 2025|#WhyIRun, Alberta, Blog, Calgary, JIA, Stories|

#WhyIRun: Stephanie + Tommy's Story Meet Stephanie, who is running with Team Cassie + Friends to raise awareness for Juvenile Arthritis for her son, Tommy! Diagnosed with oligoarticular Juvenile Idiopathic Arthritis (JIA) just after his second birthday, Tommy’s journey has been full of ups and downs. Read more about their story below, and [...]

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