Alison Legge: Navigating the workplace with a rheumatic disease I was diagnosed with Juvenile Idiopathic Arthritis (JIA) at three years old. Having dealt with the disease with varying degrees of severity for the past 24 years, I can say one of the most challenging things to manage is other [...]
bridging the gap improving lives through research, education, connection, and support We're living in a time of exciting progress, where scientific breakthroughs are paving the way for better care for children and families dealing with pediatric rheumatic diseases. Every day, dedicated researchers, including those in our CREW Network, are pushing the boundaries of [...]
Reine Hodroj - Learning to Live with Behcet's Disease Living with a chronic illness is an unimaginable challenge, and Behcet's Disease has been my constant companion in this journey. This rare autoimmune condition, characterized by recurrent oral and genital ulcers, skin lesions, and systemic inflammation, has disrupted my life in many ways. However, my [...]
Bella is turning 7 this year and while most kids her age are focused on playing outside and colouring, Bella is dealing with the ups and downs of Muckle-Wells Syndrome which includes painful injections. As you can imagine, she has been struggling with the large doses of anakinra and the needle pokes. To [...]
I graduated from the University of British Columbia in 2022 with a Bachelor of Science in Biology, with a focus in Genetics and Evolution. Shortly after graduating and working in a laboratory, I came to the realization I can make a bigger impact in healthcare and biotechnology by leveraging my scientific expertise to [...]
My name is Kayla, I am 25 years old and have lived with arthritis for over half my life. I attended Pain Education Day at the International Symposium for Pediatric Pain last month, and it was not what I initially expected. I didn't realize I would have the opportunity to meet so many other [...]
Throughout my life I have been granted many titles; mom, wife, daughter, registered nurse, and writer are just a few. These are the titles that are associated with my name. I could be described as outgoing, humorous, modest, and perhaps kind too. These would be some characteristics that people from a distance would use [...]
Meet Lily. One morning, at the young age of 2, our daughter Lily woke up limping and her left knee looked slightly swollen. She didn't seem to show that she was in pain, but was refraining from putting weight on her left leg. We had no idea what happened and didn't recall any [...]
When I first heard of the medication Ondansetron, I couldn’t help but think about how its name sounded like a character from the Transformers movies. While this medication doesn’t fight space aliens or have a special effects budget, it does hold the capacity to TRANSFORM lives. How might you ask?Methotrexate is a [...]
"Working out and going to the gym helped me regain my physical ability but also my confidence, energy and overall mental wellbeing." - Ryan Dekker, Young Adult Living with JA As someone who grew up with an active lifestyle (and plenty of energy), finding a way to stay active [...]
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