October 2023

Seeing Possibilities after Diagnosis: a Uveitis Story

By |October 24th, 2023|About JIA, Advice, Advocacy, Blog, CREW, Rare Disease, Saskatchewan, Stories, Uveitis|

Throughout my life I have been granted many titles; mom, wife, daughter, registered nurse, and writer are just a few. These are the titles that are associated with my name. I could be described as outgoing, humorous, modest, and perhaps kind too. These would be some characteristics that people from a distance would use [...]

Lily’s Journey to Diagnosis, Methotrexate, and Finding A Community of Support

By |October 19th, 2023|Injection, JIA, Medication, Methotrexate, Newly Diagnosed, School, School Toolkit, TMJ|

Meet Lily. One morning, at the young age of 2, our daughter Lily woke up limping and her left knee looked slightly swollen. She didn't seem to show that she was in pain, but was refraining from putting weight on her left leg. We had no idea what happened and didn't recall any [...]

OPT-JIA Premedication Trial

By |October 17th, 2023|Blog, Current Research, Future Research, Injection, JIA, Medication, Research|

When I first heard of the medication Ondansetron, I couldn’t help but think about how its name sounded like a character from the Transformers movies. While this medication doesn’t fight space aliens or have a special effects budget, it does hold the capacity to TRANSFORM lives. How might you ask?Methotrexate is a [...]

Managing JA through Movement: How Ryan’s Gym Routine Helped Him to Build Physical (and Mental) Health and Lifted His Disease Management to the Next Level

By |October 3rd, 2023|Mental Health, Newly Diagnosed, Physical Activity, School Toolkit|

"Working out and going to the gym helped me regain my physical ability but also my confidence, energy and overall mental wellbeing." - Ryan Dekker, Young Adult Living with JA As someone who grew up with an active lifestyle (and plenty of energy), finding a way to stay active [...]

September 2023

Navigating School + Life with JIA – Jessica’s Story

By |September 6th, 2023|Blog, Ontario, Stories, Toronto|

"I soon began to experience extreme pain in my wrists, which would cause challenges for me whenever I would be at school or would work on school assignments." My name is Jessica Gill. I am from Toronto, Ontario, Canada. I was diagnosed with Juvenile Idiopathic Arthritis at the age of eight years [...]

August 2023

C+F Inventing Room: Reinventing the Injection Experience for Kids and Families Affected by JA and other childhood rheumatic diseases in Canada

By |August 31st, 2023|Advice, Advocacy, Blog, Injection, Medication|

Inspired by the Roald Dahl Charity’s Marvellous Nurse Inventing Rooms, on August 23rd, we hosted our very own C+F Inventing Room to ask the community and together envision what our C+F Injection Coping Kits should include. With the help of medical experts, parents and youth, we dove in and got to work! We started [...]

June 2023

Youth Story: My experience with JIA and finding Cassie + Friends

By |June 28th, 2023|B.C., Blog, Fundraising, JIA, Movement, Physical Activity, Stories, Vancouver|

"Throughout all of these experiences that I have had with Cassie + Friends, there is one throughline: Understanding. Understanding is a concept not to be underestimated." Meet Ciara. It was after after my body couldn’t row anymore, my hands couldn’t hold the pencil, my joints ached in pain, and after my diagnosis of [...]

Highschool, Football, & Back Pain: Ryan’s Story

By |June 23rd, 2023|B.C., JIA, Newly Diagnosed, Stories, Teen Transitions, Vancouver|

"Explaining this to fellow highschoolers was difficult, often times just resulting in being the butt of the joke. It was hard finding someone who understood and could relate." Meet Ryan. I first started noticing symptoms as early as age 12. At that time, many just advised me that I was going through some growing [...]

Get to know our Youth Ambassador of of the Year, Alejandra Van Dusen

By |June 8th, 2023|Advocacy, Mental Health (For Youth), Post- Secondary, Stories, Teen Transitions|

“As a young adult with JIA I have experienced firsthand just how much goes on at this age. School, work, relationships, newfound independence, transition… I wanted to create resources with short pieces of patient-driven advice to help others like me navigate the constant changes of life with rheumatic disease.” [...]

Tough as Nails: A Father Reflects on his Two Daughters and Childhood Rheumatic Disease

By |June 5th, 2023|Advocacy, High School, JIA, Post- Secondary, Rare Disease, Stories, TMJ|

"We're very proud of our girls for showing the fortitude needed to not let these diseases define them." Hello families! My name is Mike Wiens, husband to Jesica and father to two girls, Vanessa 24 yrs old, and Sarah 23 yrs old. We're happy to call Port Moody, BC our home since relocating here [...]

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