My name is Maryse Hendi, I am 18 years old, and I was diagnosed with Systemic Lupus Erythematosus (SLE) when I was 10 years old. What is SLE? More commonly known as Lupus, it is a disease in which the immune system is hyperactive and not only attacks disease-causing pathogens, but also the normal, [...]
Meet Oliver! A vibrant young boy with autoinflammatory disease living in Williams Lake, BC! Oliver has always been the type of child that brings joy to everyone around him. We couldn’t go to the grocery store without the smiling baby drawing everyone near. His first year of life was good. He was a perfectly [...]
Meet Amy and Abby Mazzone - a mom and daughter duo who’ve been fighting JIA together, along with their family, for 12 years. As with many in our community, Methotrexate has played an important, yet, challenging role in their journey to find relief from pain and allow Abby to be a kid. Below, you [...]
Show your colours for #RareDiseaseDay "We’ve had dark moments and failed medications. We recognize how much harder our son has to work when he is flaring just to do normal things, like walk up the stairs, go to school, be with his friends." -Parent, Sara Ethier on her son who lives with TRAPS- a [...]
He's better than he has been... Written by: Sara Ethier"I wrote this piece to share my son’s journey of living with a rare, one in a million Autoinflammatory Disease.Rare means that there is not a lot of research or treatment options available to children like my son who suffer. I appreciate the small steps [...]
Meet Mackenzie! Mackenzie Riddell is a 14 year old synchronized swimmer who was diagnosed with juvenile idiopathic rheumatoid arthritis (JIA) when she was 3 years old. On Saturday, January 30th (4:30 pm PST/7:30 pm EST), she will be sharing her story and advice for staying active at the upcoming Physical Activity with Rheumatic Disease [...]
Hey there, my name is Manahil. I am a 20-year-old student at the University of Alberta, currently specializing in psychology and working a research job with the Department of Medicine and Dentistry. The road here was not easy, let me tell you that. Though it was not easy, I would never change a thing. [...]
Is your family beginning to think about the transition from pediatric to adult rheumatology care? We spoke to one teen who talks about her diagnosis with rheumatic disease at age 14, and how she's been taking control of her condition two years later. This is a powerful read that offers a few starting points [...]
Is your family prepared to make the move from Pediatric to adult rheumatology care? If you're teen is graduating next year or in the near future, how can they go through the transition from pediatric to adult care as smoothly as possible? We connected with Morgan Harris who recently graduated in 2020 and has [...]
Uveitis (inflammation of the eye) is a serious complication occurring in 20% of children with Juvenile Arthritis, a condition that is hard to diagnose without regular eye screening. Treatment of Uveitis can often be aggressive, sometimes calling for eye drops multiple times a day in order to prevent vision loss and permanent damage to [...]
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