September 2024

What I wish people knew about living with Ankylosing Spondylitis

By |September 1st, 2024|Blog, Ontario, Rare Disease Stories, Stories, Toronto|

In my 7 years of living with Ankylosing Spondylitis since the age of 21, I’ve had to teach a lot of people quite a few things about my illness. It’s a relatively unheard-of form of arthritis in day-to-day life. Most people have heard of Rheumatoid Arthritis, but not usually [...]

August 2024

Radiant Resilience: Isla the JDM Warrior

By |August 4th, 2024|Blog, JDM, Ontario, Rare Disease, Rare Disease Stories, Stories, Toronto|

Radiant Resilience: Isla the JDM Warrior It was fall of 2021 and Isla was 6 years old. Her life was pretty much centred around her unwavering excitement for Halloween and being able to wear her unicorn costume to go trick-or-treating with her best friend, Alice. Over the month of October, [...]

July 2024

May 2024

February 2024

Reine Hodroj – Rare Connection with Bechet’s Disease

By |February 2nd, 2024|Blog, Ontario, Rare Disease Stories, Stories, Toronto|

Reine Hodroj - Learning to Live with Behcet's Disease Living with a chronic illness is an unimaginable challenge, and Behcet's Disease has been my constant companion in this journey. This rare autoimmune condition, characterized by recurrent oral and genital ulcers, skin lesions, and systemic inflammation, has disrupted my life in many ways. However, my [...]

September 2023

Navigating School + Life with JIA – Jessica’s Story

By |September 6th, 2023|Blog, Ontario, Stories, Toronto|

"I soon began to experience extreme pain in my wrists, which would cause challenges for me whenever I would be at school or would work on school assignments." My name is Jessica Gill. I am from Toronto, Ontario, Canada. I was diagnosed with Juvenile Idiopathic Arthritis at the age of eight years [...]

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