Bella is turning 7 this year and while most kids her age are focused on playing outside and colouring, Bella is dealing with the ups and downs of Muckle-Wells Syndrome which includes painful injections. As you can imagine, she has been struggling with the large doses of anakinra and the needle pokes. To [...]
Meet Lily. One morning, at the young age of 2, our daughter Lily woke up limping and her left knee looked slightly swollen. She didn't seem to show that she was in pain, but was refraining from putting weight on her left leg. We had no idea what happened and didn't recall any [...]
When I first heard of the medication Ondansetron, I couldn’t help but think about how its name sounded like a character from the Transformers movies. While this medication doesn’t fight space aliens or have a special effects budget, it does hold the capacity to TRANSFORM lives. How might you ask?Methotrexate is a [...]
Inspired by the Roald Dahl Charity’s Marvellous Nurse Inventing Rooms, on August 23rd, we hosted our very own C+F Inventing Room to ask the community and together envision what our C+F Injection Coping Kits should include. With the help of medical experts, parents and youth, we dove in and got to work! We started [...]
"If you told me a few years ago that I would be pursuing my dream of playing post-secondary volleyball at Dalhousie University, I would have laughed out loud because at the time it seemed near to impossible." Meet Ella. In April of 2020, I was diagnosed with a rheumatic condition you are probably [...]
Caden was diagnosed with JIA when she was just 3 years old. When we first noticed her limping, we thought she may have hurt her knee skiing as we had just taken her for her first lessons. Then one morning I saw her sneaking down the stairs from her bedroom, taking each step on [...]
Written by young adult JIA patient, Julie Beausoleil, this blog post was originally published by www.takeapaincheck.ca on June 29th, 2021. Take A Pain Check is a juvenile arthritis focussed podcast hosted by 18 year old Natasha Trehan, that provides a recognizable platform for youth and young adults to share their experience with arthritis in addition [...]
medications biologics methotrexate biosimilars There are many different medications used to treat and manage juvenile arthritis (JA) and other rheumatic diseases. Here are the main types of JA drugs and their generic names. Medications can be taken [...]
“Every furrow of her brow makes me want to stop” If you have ever struggled to give your child an injection or to manage your child’s - or your own - emotions about their treatments, you are not alone! In the lead up to our Methotrexate session, we talked with Yvonne Brandelli, PhD Student, [...]
My daughter Elena was diagnosed with Juvenile Arthritis at age 2. Arthritis? That was an elderly person’s disease, I thought. I had no idea the depth of the disease or what would lie ahead for us. First, she started with redness and swelling in her knees. I took her into the doctor and they [...]
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