October 2024

Introducing Our New Parent Ambassadors!

By |October 17th, 2024|Blog, Canada, Fundraising, Hamilton, Ontario, Toronto, Volunteer|

We are so excited to introduce you to our newest parent ambassadors, Tamara and Bobby-Jo, from our McMaster and SickKids centres! Our parent ambassadors are often the first point of contact for newly diagnosed families and are there for anyone who might be struggling or need a hand finding resources. They [...]

August 2024

A Canadian Registry for Autoinflammatory Diseases: The CAN-SAID Initiative

By |August 22nd, 2024|Canada, Rare Disease, Research|

A Canadian Registry for Autoinflammatory Diseases The CAN-SAID Initiative Great news for Canadian autoinflammatory patients of all ages: Canada is getting its own registry for systemic autoinflammatory diseases! What exactly is a systemic autoinflammatory disease? Systemic autoinflammatory diseases (SAID) currently include over 50 rare conditions that are caused by uncontrolled [...]

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