Navigating Morphea – Michelle’s Story For most of my life, I’ve had Morphea. Starting as a red mark on my chin as a young child, it eventually turned darker and over the years, spread to areas on my forehead, and neck. Morphea, also known as localized Scleroderma, is [...]
Living with JIA – Lisa’s Journey It started out as sharp pain in my hips which I believed to be a pulled muscle; however, it soon progressed into a severe pain and stiffness. Days passed as I used crutches to simply walk around, and I remember that any [...]
Growing up with JDM - Layla’s experience My experience with the healthcare system started earlier than most. I was diagnosed with Juvenile Dermatomyositis (JDM), a rare autoimmune disease that affects the muscles and skin, and since then, the Montreal Children’s Hospital has been a constant part of my life, [...]
The Federal Election is on April 28th. Make Your Voice Heard for Kids. Cassie + Friends is proud to be participating in the election advocacy campaign being led by Arthritis Society Canada along with other leading arthritis organizations. Together, we’re calling on all parties and candidates to take bold action on arthritis [...]
Are you ready to take action for kids living with Juvenile Arthritis (JA) and other rheumatic diseases? Make an immediate impact on childhood rheumatic diseases by doing #VirtuallyAnything to help raise awareness, fund research, and support families. The problem: Awareness of rheumatic conditions in youth is extremely low—only about 20% of Canadians are [...]
A Year of Advocacy and Impact: Our 2024 Highlights If it seems like we were everywhere this year - we were! We never turn down an opportunity to raise awareness about childhood rheumatic diseases or advocate for more resources for our community. That’s what makes Cassie + Friends the leading voice for [...]
We are so excited to introduce you to our newest parent ambassadors, Tamara and Bobby-Jo, from our McMaster and SickKids centres! Our parent ambassadors are often the first point of contact for newly diagnosed families and are there for anyone who might be struggling or need a hand finding resources. They [...]
A Canadian Registry for Autoinflammatory Diseases The CAN-SAID Initiative Great news for Canadian autoinflammatory patients of all ages: Canada is getting its own registry for systemic autoinflammatory diseases! What exactly is a systemic autoinflammatory disease? Systemic autoinflammatory diseases (SAID) currently include over 50 rare conditions that are caused by uncontrolled [...]
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