Macrophage Activation Syndrome (MAS) is severe inflammation of the immune system which can be associated with rheumatologic conditions such as Juvenile Idiopathic Arthritis (JIA). I was diagnosed with both conditions in October 2010. My name is Gauri Raj and I am currently 21 years old. When I was 10 years old, I had lost [...]
Cassie + Friends is joining other leading pain and pain-related organizations to support the recommendations of the #CanadianPainTaskForce and call for their implementation. Over the next week, we will be sharing some of the targeted recommendations laid out in “An Action Plan for Pain in Canada” and why they are important to kids, youth [...]
How can we best transform the lives of youth affected by rheumatic diseases through Cassie + Friends? This March, in recognition of juvenile arthritis awareness month and #WORDDay, we hosted the very first Cassie + Friends Hackathon to get creative and collaborative around community-driven solutions that answer the question “How can we best transform [...]
In recognition of World yOung Rheumatic Disease (WORD) Day, we’re bringing together 16 youth, parents, and healthcare professionals to “hack” their way to innovative solutions to the question: How can we best transform the lives of youth affected by rheumatic diseases through Cassie + Friends? What is a Hackathon? Rooted in the concept of [...]
Dear Friends + Partners, As part of our advocacy for Juvenile Arthritis Awareness Month, I am pleased to let you know about a special editorial by Cassie + Friends appearing today in the Toronto Star newspaper and digitally on healthinsight.ca. Click here for a link to the full article. Your voice is so important [...]
Every three in 1000 Canadian children will be diagnosed with a rheumatic disease like Juvenile Arthritis, Lupus, Fever Syndromes, Vasculitis, JDM and more. Some will develop a related eye condition that, left untreated, can cause blindness. Up to 60% will have active disease into adulthood. This March, we’re asking you to stand with us [...]
Show your colours for #RareDiseaseDay "We’ve had dark moments and failed medications. We recognize how much harder our son has to work when he is flaring just to do normal things, like walk up the stairs, go to school, be with his friends." -Parent, Sara Ethier on her son who lives with TRAPS- a [...]
Autoinflammatory vs Autoimmune Diseases Coined less than 20 years ago, the word autoinflammatory is often confused with autoimmune—so, what’s the difference? When we think of the word autoimmune, most people understand that it means your body is attacking itself the way it attacks invaders, like bacteria and viruses. These autoimmune responses run on a [...]
How have you felt seeing some of the familiar medications used to treat Juvenile Arthritis and other childhood rheumatic diseases, like Lupus, suddenly in the news? With clinical trials and major news articles now talking about treatments like Actemra and Plaquenil as potential answers to the COVID-19 pandemic, we want to make sure the [...]
Day 1 Under clear skies and magnificent views of the Lake Louise Glacier an intrepid group of riders representing Canada, Germany, Italy, Mexico and The Netherlands started the 2019 UCAN Ride4Kids. Attendants to the Childhood Arthritis and Beyond Conference enthusiastically bid farewell to the riders and after an inspiring speech by David Porte, Chairman [...]
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