In recognition of World yOung Rheumatic Disease (WORD) Day, we’re bringing together 16 youth, parents, and healthcare professionals to “hack” their way to innovative solutions to the question: How can we best transform the lives of youth affected by rheumatic diseases through Cassie + Friends? What is a Hackathon? Rooted in the concept of [...]
Dear Friends + Partners, As part of our advocacy for Juvenile Arthritis Awareness Month, I am pleased to let you know about a special editorial by Cassie + Friends appearing today in the Toronto Star newspaper and digitally on healthinsight.ca. Click here for a link to the full article. Your voice is so important [...]
Every three in 1000 Canadian children will be diagnosed with a rheumatic disease like Juvenile Arthritis, Lupus, Fever Syndromes, Vasculitis, JDM and more. Some will develop a related eye condition that, left untreated, can cause blindness. Up to 60% will have active disease into adulthood. This March, we’re asking you to stand with us [...]
Show your colours for #RareDiseaseDay "We’ve had dark moments and failed medications. We recognize how much harder our son has to work when he is flaring just to do normal things, like walk up the stairs, go to school, be with his friends." -Parent, Sara Ethier on her son who lives with TRAPS- a [...]
Autoinflammatory vs Autoimmune Diseases Coined less than 20 years ago, the word autoinflammatory is often confused with autoimmune—so, what’s the difference? When we think of the word autoimmune, most people understand that it means your body is attacking itself the way it attacks invaders, like bacteria and viruses. These autoimmune responses run on a [...]
How have you felt seeing some of the familiar medications used to treat Juvenile Arthritis and other childhood rheumatic diseases, like Lupus, suddenly in the news? With clinical trials and major news articles now talking about treatments like Actemra and Plaquenil as potential answers to the COVID-19 pandemic, we want to make sure the [...]
Day 1 Under clear skies and magnificent views of the Lake Louise Glacier an intrepid group of riders representing Canada, Germany, Italy, Mexico and The Netherlands started the 2019 UCAN Ride4Kids. Attendants to the Childhood Arthritis and Beyond Conference enthusiastically bid farewell to the riders and after an inspiring speech by David Porte, Chairman [...]
Last month, Cassie and Friends' Juvenile Arthritis at School Puppet Show hit the road to bring juvenile arthritis education to the Okanagan! The special puppet show, which was offered free-of-charge to schools by Cassie and Friends with support from a $10,000 grant from the Telus Friendly Futures Foundation, tells the story of Cassie - a [...]
Parents, we hear you! Help us prepare your child and YOU for JIA and JIA treatment-related pain. If you are like most parents in our community, pain, medications (giving medications, side effects, etc) and associated mental health issues are some of your TOP concerns for your child with arthritis. And while you recognize treatments [...]
Tell your MLA: Save the Penticton Arthritis Centre! BC Minister of HealthHon. Adrian DixHLTH.Minister@gov.bc.ca5022 Joyce St.Vancouver, BC V5R 4G6adrian.dix.MLA@leg.bc.caPhone: (604) 660-0314-----------------------------------------------------------Boundary-SimilkameenLinda LarsonBox 998 - 6369 Main StreetOliver, BC V0H 1T0linda.larson.MLA@leg.bc.caPhone: (250) 498-5122Columbia River-RevelstokeDoug Clovechok 362 Wallinger Ave.Kimberley , BC V1A 1Z4doug.clovechok.MLA@leg.bc.caPhone: (250) 432-2300OR107 First St. EastRevelstoke, BCPhone: (250) 805-0323Fraser-Nicola (Lillooet, Merritt)Jackie TegartPO Box 279, 405 Railway [...]
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