February 2026

The Long Road to a Name: Daniela’s Lupus Story

By |February 20th, 2026|Advice, Blog, Lupus, Ontario, Rare Disease Stories, Stories|

Editor’s Note Daniela is an 18-year-old youth living with Systemic Lupus Erythematosus. In this piece, she shares her journey to diagnosis, the realities of growing up with a chronic illness, and how her experiences have shaped her passion for advocacy and helping others navigating childhood-onset rheumatic disease. [...]

August 2025

December 2024

Tips for Navigating the Holiday Season with JIA

By |December 11th, 2024|Advice, Blog|

The holiday season has always been one of my favourite times of the year—twinkling lights, family gatherings, and cozy nights by the fire. But since Charlie’s Juvenile Arthritis (JIA) diagnosis, we’ve learned that winter holidays come with their own set of challenges for our family. From chilly weather that can worsen joint pain [...]

October 2024

Alison Legge: Navigating the Workplace with a Rheumatic Disease, Part 2

By |October 24th, 2024|Advice, Blog, Stories, Work + Careers|

Alison Legge: Navigating the workplace with a rheumatic disease, Part 2 Earlier this year, we heard from Alison, who shared her story about navigating the workplace with a rheumatic disease. Now in her new role, Alison shared an update with us about her journey, and how what she has been through over the [...]

September 2024

What I wish people knew about living with Ankylosing Spondylitis

By |September 1st, 2024|Blog, Ontario, Rare Disease Stories, Stories, Toronto|

In my 7 years of living with Ankylosing Spondylitis since the age of 21, I’ve had to teach a lot of people quite a few things about my illness. It’s a relatively unheard-of form of arthritis in day-to-day life. Most people have heard of Rheumatoid Arthritis, but not usually [...]

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