May 2021

Parenting a child with JIA: Fear, uncertainty, hope, and an endless list of questions

By |May 13th, 2021|Advice, JIA, Mental Health, Mental Health (Caregivers), Stories|

I am the proud mother to a vibrant 3.5-year-old, Émilie, who was diagnosed with Juvenile Idiopathic Arthritis (JIA) shortly before her second birthday. We were fortunate as a family to receive a diagnosis in a relatively rapid timeframe thanks to knowledge about navigating the health care system (I work as a nurse) and a [...]

March 2021

December 2020

October 2020

JIA My Way: How one teen is taking charge of her arthritis

By |October 29th, 2020|High School, JIA, School Toolkit, Stories, Teen Transitions|

Is your family beginning to think about the transition from pediatric to adult rheumatology care?  We spoke to one teen who talks about her diagnosis with rheumatic disease at age 14, and  how she's been taking control of her condition two years later. This is a powerful read that offers a few starting points [...]

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