June 2025

Growing up with JDM – Layla’s experience

By |June 6th, 2025|Advice, Blog, Canada, JDM, Montreal, Quebec, Stories|

Growing up with JDM - Layla’s experience My experience with the healthcare system started earlier than most. I was diagnosed with Juvenile Dermatomyositis (JDM), a rare autoimmune disease that affects the muscles and skin, and since then, the Montreal Children’s Hospital has been a constant part of my life, [...]

August 2024

Radiant Resilience: Isla the JDM Warrior

By |August 4th, 2024|Blog, JDM, Ontario, Rare Disease, Rare Disease Stories, Stories, Toronto|

Radiant Resilience: Isla the JDM Warrior It was fall of 2021 and Isla was 6 years old. Her life was pretty much centred around her unwavering excitement for Halloween and being able to wear her unicorn costume to go trick-or-treating with her best friend, Alice. Over the month of October, [...]

March 2023

May 2018

Why I Run: Marie’s Story

By |May 28th, 2018|JDM, Rare Disease Stories, Scotiabank Charity Challenge, Stories|

I want to let you know why I am walking this Charity Challenge for Cassie and Friends.  “Autoimmunity is the system of immune responses of an organism against its own healthy cells and tissues. Any disease that results from such an aberrant immune response is termed an 'autoimmune disease.'" My dad’s cousin Gladys Marie [...]

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