9 Tips for Homeschooling Your Child with JIA One of the many impacts of COVID was a surge in homeschooling, not just during the pandemic but well after. This back-to-school season, we’re pleased to share some tips from JIA parent, Kathleen Bailey, who has homeschooled her children for many years and has a [...]
Where Are They Now? Ravia Frison For this edition of, “Where Are They Now?”, we caught up with Ravia Frison. You may remember Ravia from our What is JIA video, where she poignantly shares what it is like to live with an often invisible disease like JIA. We’re so honoured to [...]
Radiant Resilience: Isla the JDM Warrior It was fall of 2021 and Isla was 6 years old. Her life was pretty much centred around her unwavering excitement for Halloween and being able to wear her unicorn costume to go trick-or-treating with her best friend, Alice. Over the month of October, [...]
#WhyIRun – Annika’s CRMO Journey Annika hurt her ankle in December 2021. She complained of pain, but we didn’t see any swelling or bruising. We took her to our family doctor, who then sent her for an X-ray. He didn’t see anything from that, so we went [...]
#WhyIRun - Two Sisters' Story The Story of Two Sisters Hello, my name is Queena, and I was diagnosed with Lupus and Juvenile Arthritis in 2021. During this time, it was hard to ask for help. For the most part my "illness" - or whatever was causing my swollen joints and excruciating [...]
Youth Mental Health Strategy Funding Announcement NEWS RELEASE Two Canadian teams awarded new funding to study mental illness in youth with rheumatic diseases. Brain Canada and Cassie + Friends unveil the recipients of the Addressing Mental Health in Paediatric Rheumatic Diseases Team Grants program. Source: Brain Canada MONTREAL, April [...]
Alison Legge: Navigating the workplace with a rheumatic disease I was diagnosed with Juvenile Idiopathic Arthritis (JIA) at three years old. Having dealt with the disease with varying degrees of severity for the past 24 years, I can say one of the most challenging things to manage is other [...]
bridging the gap improving lives through research, education, connection, and support We're living in a time of exciting progress, where scientific breakthroughs are paving the way for better care for children and families dealing with pediatric rheumatic diseases. Every day, dedicated researchers, including those in our CREW Network, are pushing the boundaries of [...]
Reine Hodroj - Learning to Live with Behcet's Disease Living with a chronic illness is an unimaginable challenge, and Behcet's Disease has been my constant companion in this journey. This rare autoimmune condition, characterized by recurrent oral and genital ulcers, skin lesions, and systemic inflammation, has disrupted my life in many ways. However, my [...]
Bella is turning 7 this year and while most kids her age are focused on playing outside and colouring, Bella is dealing with the ups and downs of Muckle-Wells Syndrome which includes painful injections. As you can imagine, she has been struggling with the large doses of anakinra and the needle pokes. To [...]
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