December 2024

A Guide to Accommodations: Acceptance, Peer Pressure, and Fear

By |December 16th, 2024|Advice, Blog, High School, Post- Secondary, Work + Careers|

A Guide to Accommodations Acceptance, Peer Pressure, and Fear We’re honoured to share this piece by Kayla Caddy, a young adult living with Juvenile Idiopathic Arthritis (JIA) who works as a job coach for people on the autism spectrum. Drawing on her lived experience and professional expertise, Kayla shares with us [...]

Tips for Navigating the Holiday Season with JIA

By |December 11th, 2024|Advice, Blog|

The holiday season has always been one of my favourite times of the year—twinkling lights, family gatherings, and cozy nights by the fire. But since Charlie’s Juvenile Arthritis (JIA) diagnosis, we’ve learned that winter holidays come with their own set of challenges for our family. From chilly weather that can worsen joint pain [...]

October 2024

Navigating Medical School: Alejandra’s First Year

By |October 26th, 2024|Advice, Blog, Post- Secondary, Saskatchewan, Stories, Work + Careers|

Navigating Medical School: Alejandra's First Year Our Youth Mentor, Alejandra, reflects on her experience in medical school and shares what it’s been like as she navigates her first year. Many youth with chronic illnesses, like JIA, often aspire to be doctors or other healthcare providers, as they are inspired by their own [...]

Alison Legge: Navigating the Workplace with a Rheumatic Disease, Part 2

By |October 24th, 2024|Advice, Blog, Stories, Work + Careers|

Alison Legge: Navigating the workplace with a rheumatic disease, Part 2 Earlier this year, we heard from Alison, who shared her story about navigating the workplace with a rheumatic disease. Now in her new role, Alison shared an update with us about her journey, and how what she has been through over the [...]

August 2024

April 2024

Alison Legge: Navigating the Workplace with a Rheumatic Disease

By |April 3rd, 2024|Advice, Blog, Stories, Work + Careers|

Alison Legge: Navigating the workplace with a rheumatic disease I was diagnosed with Juvenile Idiopathic Arthritis (JIA) at three years old. Having dealt with the disease with varying degrees of severity for the past 24 years, I can say one of the most challenging things to manage is other [...]

October 2023

Seeing Possibilities after Diagnosis: a Uveitis Story

By |October 24th, 2023|About JIA, Advice, Advocacy, Blog, CREW, Rare Disease, Saskatchewan, Stories, Uveitis|

Throughout my life I have been granted many titles; mom, wife, daughter, registered nurse, and writer are just a few. These are the titles that are associated with my name. I could be described as outgoing, humorous, modest, and perhaps kind too. These would be some characteristics that people from a distance would use [...]

August 2023

C+F Inventing Room: Reinventing the Injection Experience for Kids and Families Affected by JA and other childhood rheumatic diseases in Canada

By |August 31st, 2023|Advice, Advocacy, Blog, Injection, Medication|

Inspired by the Roald Dahl Charity’s Marvellous Nurse Inventing Rooms, on August 23rd, we hosted our very own C+F Inventing Room to ask the community and together envision what our C+F Injection Coping Kits should include. With the help of medical experts, parents and youth, we dove in and got to work! We started [...]

June 2022

Jenna’s Story – Enthesitis related arthritis

By |June 20th, 2022|Advice, Blog, JIA, Medication, Physical Activity, Stories|

We have been asking youth with rheumatic disease to share their story! Sharing stories helps build community and connections. We hope that Jenna’s amazing story inspires you to share your own story.  My name is Jenna Kedy. I am 18 years old and live in Halifax, Nova Scotia.  As a child, I was often [...]

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