October 2023

OPT-JIA Premedication Trial

By |October 17th, 2023|Blog, Current Research, Future Research, Injection, JIA, Medication, Research|

When I first heard of the medication Ondansetron, I couldn’t help but think about how its name sounded like a character from the Transformers movies. While this medication doesn’t fight space aliens or have a special effects budget, it does hold the capacity to TRANSFORM lives. How might you ask?Methotrexate is a [...]

August 2023

C+F Inventing Room: Reinventing the Injection Experience for Kids and Families Affected by JA and other childhood rheumatic diseases in Canada

By |August 31st, 2023|Advice, Advocacy, Blog, Injection, Medication|

Inspired by the Roald Dahl Charity’s Marvellous Nurse Inventing Rooms, on August 23rd, we hosted our very own C+F Inventing Room to ask the community and together envision what our C+F Injection Coping Kits should include. With the help of medical experts, parents and youth, we dove in and got to work! We started [...]

January 2019

Erika and Elena’s arthritis journey: Staying strong through the ups and downs

By |January 31st, 2019|Advice, Injection, Stories|

My daughter Elena was diagnosed with Juvenile Arthritis at age 2. Arthritis? That was an elderly person’s disease, I thought. I had no idea the depth of the disease or what would lie ahead for us. First, she started with redness and swelling in her knees. I took her into the doctor and they [...]

November 2018

Emily’s story: Navigating pain, planes and biologics

By |November 9th, 2018|Pain Tips, Stories|

Tanya Cassidy Irwin is a mother and Cassie and Friends community member from Langley, BC. This is her story of navigating pain, travel, medication and the unknown throughout her daughter Emily's journey with Oligoarticular JIA.    In September 2015 there was the most subtle of hitches in our daughter Emily's step. Within three weeks she [...]

August 2017

RESEARCH: What matters to you most when thinking about stopping medicines?

By |August 25th, 2017|News, Research|

One of the hardest and most nerve-wracking decisions for children and teens with juvenile arthritis (also called juvenile idiopathic arthritis) and their parents is deciding when to stop medicines. The doctors from Pediatric Rheumatology at the BC Children’s Hospital in Vancouver, BC, Canada are working with other researchers based at Rutgers University (NJ) and from [...]

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