September 2024

What I wish people knew about living with Ankylosing Spondylitis

By |September 1st, 2024|Blog, Ontario, Rare Disease Stories, Stories, Toronto|

In my 7 years of living with Ankylosing Spondylitis since the age of 21, I’ve had to teach a lot of people quite a few things about my illness. It’s a relatively unheard-of form of arthritis in day-to-day life. Most people have heard of Rheumatoid Arthritis, but not usually [...]

August 2024

September 2022

When life gives you lemons…

By |September 9th, 2022|JIA, London, Medication, Ontario, sJIA, Stories|

Make lemonade! At least that’s what Jacob Shiell did when he was diagnosed with Systemic Idiopathic Juvenile Arthritis (SJIA) on his eighth birthday in October 2021.  Jacob’s journey began with unexplained foot pain and swelling. Over the next few weeks, the pain and swelling worsened and spread to his right knee, elbow and wrist. [...]

June 2022

Jenna’s Story – Enthesitis related arthritis

By |June 20th, 2022|Advice, Blog, JIA, Medication, Physical Activity, Stories|

We have been asking youth with rheumatic disease to share their story! Sharing stories helps build community and connections. We hope that Jenna’s amazing story inspires you to share your own story.  My name is Jenna Kedy. I am 18 years old and live in Halifax, Nova Scotia.  As a child, I was often [...]

May 2022

March 2022

Meet Addie!

By |March 22nd, 2022|JIA, Northern BC|

Addie, Prince George, BC 14 years old, Psoriatic JIA I used to hike and play school sports like basketball and volleyball. Now, I’m not able to because my arthritis hurts too much in my elbow, ankles and knees. This last year I started on the volleyball team, but had to stop playing because of [...]

Road Trip to Diagnosis: What happens when you live 12 hours from the nearest children’s hospital?

By |March 11th, 2022|Blog, JIA, Northern BC, Stories|

A year and a half ago our daughter was diagnosed with psoriatic arthritis. Her pain and psoriasis started about a year before that but between misdiagnosis and chalking things up to growing pains, we had no idea JIA was even a thing. It all came to a head after a hike when her knee [...]

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