September 2024

True North Resilience: Kira Young’s Story

By |September 15th, 2024|Advocacy, Blog, MAS, Northwest Territories, Rare Disease, sJIA, Stories|

At Cassie + Friends, we believe that every child and family should have access to timely and optimal rheumatic disease care. That’s why we launched the C+F Northern BC Project, to better understand the barriers to diagnosis, care, and patient support for families living in remote/rural communities and explore how we can work [...]

June 2024

#WhyIRun – Lillian, Our Rheumatic Disease Warrior

By |June 19th, 2024|#WhyIRun, Ontario, Ottawa, sJIA, Stories|

#WhyIRun For Lillian - Our Rheumatic Disease Warrior Our journey with Rheumatic Disease began in June 2022. After 11 days of fever, Lillian, then just shy of her 3rd birthday, was seen, diagnosed, and treated for Incomplete Kawasaki disease at CHEO (Children’s Hospital of Eastern Ontario). Luckily, she responded to the IVIG treatment and [...]

February 2023

September 2022

When life gives you lemons…

By |September 9th, 2022|JIA, London, Medication, Ontario, sJIA, Stories|

Make lemonade! At least that’s what Jacob Shiell did when he was diagnosed with Systemic Idiopathic Juvenile Arthritis (SJIA) on his eighth birthday in October 2021.  Jacob’s journey began with unexplained foot pain and swelling. Over the next few weeks, the pain and swelling worsened and spread to his right knee, elbow and wrist. [...]

February 2022

“His friends have no idea what he has gone through.”

By |February 25th, 2022|JIA, Rare Disease Stories, sJIA, Stories, Vancouver|

I don’t know if there can be a ‘typical’ journey for a young child who receives a Juvenile Arthritis diagnosis. But this is Linden’s story so far. When Linden got sick at 18 months old, we thought it was just a cold. But then came an unusual rash and his walking deteriorated. We visited [...]

November 2021

May 2020

May 2017

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