#KidsCantWait: Rylee's Journey The First Signs November 30th, 2016, Rylee Lynn Rideout arrived making us parents for the first time and becoming the first grandchild and niece in our families. The years that followed were nothing short of amazing, Rylee developed a love for life and a sparkle that we [...]
#KidsCantWait: Simon's Journey The Early Signs Simon’s journey began when he was around 10; he has always been an active, strong-willed child. He never complained when falling or having some scratches for his rough, playful adventures, but he wasn’t happy with our long walks. As a family, [...]
#KidsCantWait: Rosalie's Journey As a parent/caregiver, you envision your children growing up happy and healthy, enjoying life to the fullest. However, life tends to chuckle at our best laid plans, and that was the case with our middle daughter, Rosalie, who was diagnosed with Polyarticular Juvenile Idiopathic [...]
#KidsCantWait: Harley's Journey Harley is our tiny warrior. Just after turning 2, in August 2022, Harley started having difficulty walking one day out of nowhere. It pained her to tears and she had to hold onto someone to walk or be carried. She was on Amoxicillin for an ear infection, [...]
Only 1 in 5 Canadians Know Kids Get Arthritis. Help Us Change That. Many people mistakenly believe arthritis only affects older adults but in reality, Juvenile Arthritis is the most common cause of chronic childhood disability in Canada, affecting over 25,000 children and youth. Low awareness and dangerous myths are putting kids at [...]
25,000 Kids Can't Wait. Watch this space for updates on how you can join our campaign to ensure that the 25,000 kids and families affected by JA and other rheumatic diseases have the support they need this #JIAAwarenessMonth #JIAAwarenessMonth Connection Event for Youth #JIAAwarenessMonth Connection Event [...]
Where Are They Now: Zahra's Story In this special Rare Disease Month edition of “Where Are They Now”, we caught up with Zahra Alidina. In 2023, Zahra shared what life was like living with an autoinflammatory disease that is so rare it doesn’t even have a name. We’re so honoured to share this [...]
Blending Lived Experience with Research: Brittany's Story Hi! I’m Brittany – and I’m here to share with you a bit about my experience as someone who works in health research and lives with Ankylosing Spondylitis! I currently work as a Senior Research Associate at the University of [...]
From Patient to Pediatric Rheumatologist: Dr. Molly Dushnicky Dr. Molly Dushnicky’s story sounds like a lot of her patients’: When she was just 18 months old, she stopped walking, her knees wouldn’t bend easily, and she wasn’t her usual happy self. That’s when she was diagnosed with Juvenile Idiopathic Arthritis [...]
A recent report by Mental Health Research Canada underscores the pressing need for improved access to mental health services for youth. Vulnerable groups, including those already managing chronic conditions, face particularly steep challenges. Among these, youth with Juvenile Idiopathic Arthritis (JIA) and other rheumatic diseases experience disproportionately high rates of anxiety, depression, and [...]
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