June 2024

#WhyIRun – Lillian, Our Rheumatic Disease Warrior

By |June 19th, 2024|#WhyIRun, Ontario, Ottawa, sJIA, Stories|

#WhyIRun For Lillian - Our Rheumatic Disease Warrior Our journey with Rheumatic Disease began in June 2022. After 11 days of fever, Lillian, then just shy of her 3rd birthday, was seen, diagnosed, and treated for Incomplete Kawasaki disease at CHEO (Children’s Hospital of Eastern Ontario). Luckily, she responded to the IVIG treatment and [...]

May 2024

February 2024

Reine Hodroj – Rare Connection with Bechet’s Disease

By |February 2nd, 2024|Blog, Ontario, Rare Disease Stories, Stories, Toronto|

Reine Hodroj - Learning to Live with Behcet's Disease Living with a chronic illness is an unimaginable challenge, and Behcet's Disease has been my constant companion in this journey. This rare autoimmune condition, characterized by recurrent oral and genital ulcers, skin lesions, and systemic inflammation, has disrupted my life in many ways. However, my [...]

September 2023

Navigating School + Life with JIA – Jessica’s Story

By |September 6th, 2023|Blog, Ontario, Stories, Toronto|

"I soon began to experience extreme pain in my wrists, which would cause challenges for me whenever I would be at school or would work on school assignments." My name is Jessica Gill. I am from Toronto, Ontario, Canada. I was diagnosed with Juvenile Idiopathic Arthritis at the age of eight years [...]

December 2022

Iyla’s Story: Finding Comfort and Inspiration with JIA

By |December 13th, 2022|Blog, JIA, London, Stories|

Thank you to everyone who helped make Giving Tuesday a huge success for children and families affected by Juvenile Arthritis and other rheumatic diseases - including one very special gift we wanted to share with you from eight-year old Iyla. Iyla, from Meaford, Ontario, has been diligently raising money for Cassie + Friends all [...]

October 2022

A Pain-Free Future for Kids – One Step(pingstone) at a Time

By |October 18th, 2022|Blog, Hamilton, Movement, News, Research, Stories|

Three-year-old Katherine can keep up with other kids now, but that wasn't always the case... When Alana noticed her daughter was limping at the playground, she didn't know what to think - especially when the limp didn't go away. She decided to bring her to a doctor to be examined. After weeks of testing [...]

September 2022

Managing Friends, Sports, and JIA: Josie’s Story

By |September 29th, 2022|Blog, Ontario, Stories|

Hey! My name is Josie Fratarcangeli, and I am from Woodstock, Ontario. I was diagnosed with Polyarticular Juvenile Idiopathic Arthritis when I was 4 years old. I am currently 17 years old – and have just “graduated” from London Health Science’s Pediatric Medical Day Unit (PMDU) where I got my monthly infusions of Remicade [...]

When life gives you lemons…

By |September 9th, 2022|JIA, London, Medication, Ontario, sJIA, Stories|

Make lemonade! At least that’s what Jacob Shiell did when he was diagnosed with Systemic Idiopathic Juvenile Arthritis (SJIA) on his eighth birthday in October 2021.  Jacob’s journey began with unexplained foot pain and swelling. Over the next few weeks, the pain and swelling worsened and spread to his right knee, elbow and wrist. [...]

June 2022

March 2022

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