October 2024

#WhyIRun – Audrey’s Story

By |October 2nd, 2024|#WhyIRun, Blog, Hamilton, JIA, Ontario, Stories|

#WhyIRun – Audrey’s Story In this #WhyIRun, we hear from the Rose family, who share their daughter Audrey’s journey with Juvenile Idiopathic Arthritis (JIA). Audrey and her family will be participating in our upcoming run/walk at Hamilton’s Road2Hope marathon on November 2, 2024, where they are not only the top fundraiser for [...]

September 2024

What I wish people knew about living with Ankylosing Spondylitis

By |September 1st, 2024|Blog, Ontario, Rare Disease Stories, Stories, Toronto|

In my 7 years of living with Ankylosing Spondylitis since the age of 21, I’ve had to teach a lot of people quite a few things about my illness. It’s a relatively unheard-of form of arthritis in day-to-day life. Most people have heard of Rheumatoid Arthritis, but not usually [...]

August 2024

Radiant Resilience: Isla the JDM Warrior

By |August 4th, 2024|Blog, JDM, Ontario, Rare Disease, Rare Disease Stories, Stories, Toronto|

Radiant Resilience: Isla the JDM Warrior It was fall of 2021 and Isla was 6 years old. Her life was pretty much centred around her unwavering excitement for Halloween and being able to wear her unicorn costume to go trick-or-treating with her best friend, Alice. Over the month of October, [...]

July 2024

Fuelled by Purpose: Juvenile Arthritis Mom and Local Entrepreneur Accelerates Race to a Cure

By |July 23rd, 2024|Current Events, Fundraising, JIA, Ontario, Stories|

Fuelled by Purpose Juvenile Arthritis Mom and Local Entrepreneur Accelerates Race to a Cure Alana Hurov’s daughter, Katherine, was diagnosed with Polyarticular Juvenile Idiopathic Arthritis (JIA) at just two years old. Katherine's journey, like that of many children battling rheumatic diseases, has been challenging yet marked by her remarkable [...]

June 2024

#WhyIRun – Lillian, Our Rheumatic Disease Warrior

By |June 19th, 2024|#WhyIRun, Ontario, Ottawa, sJIA, Stories|

#WhyIRun For Lillian - Our Rheumatic Disease Warrior Our journey with Rheumatic Disease began in June 2022. After 11 days of fever, Lillian, then just shy of her 3rd birthday, was seen, diagnosed, and treated for Incomplete Kawasaki disease at CHEO (Children’s Hospital of Eastern Ontario). Luckily, she responded to the IVIG treatment and [...]

May 2024

February 2024

Reine Hodroj – Rare Connection with Behçet’s disease

By |February 2nd, 2024|Blog, Ontario, Rare Disease Stories, Stories, Toronto|

Reine Hodroj - Learning to Live with Behcet's Disease Living with a chronic illness is an unimaginable challenge, and Behcet's Disease has been my constant companion in this journey. This rare autoimmune condition, characterized by recurrent oral and genital ulcers, skin lesions, and systemic inflammation, has disrupted my life in many ways. However, my [...]

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